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What are the common and uncommon gene mutations among cystic fibrosis children in south India

Prevalence of gene mutations in children with cystic fibrosis, attending cystic fibrosis clinics in Aster hospitals in south india

Status
Active, not recruiting
Phases
Unknown
Study type
Observational
Source
CTRI
Registry ID
CTRI/2022/12/047881
Enrollment
100
Registered
2022-12-05
Start date
Unknown
Completion date
Unknown
Last updated
2023-01-09

For informational purposes only — not medical advice. Sourced from public registries and may not reflect the latest updates. Terms

Conditions

Health Condition 1: J988- Other specified respiratory disorders

Interventions

Control Intervention1: Not Applicable: Not Applicable

Sponsors

Aster CMI Hospital
Lead Sponsor

Eligibility

Inclusion criteria

Inclusion criteria: 1. Confirmed diagnosis of cystic fibrosis by sweat chloride analysis 2. Sibling of affected individual with chronic wet cough 3. Parents of affected individual 4. High index of suspicion of cystic fibrosis clinically, with negative sweat chloride test

Exclusion criteria

Exclusion criteria: 1. Children diagnosed of primary immunodeficiency disorders

Design outcomes

Primary

MeasureTime frame
The study will be focused on the full CFTR gene sequence and identified disease-causing variants in three phases : Screening for known and structural variants; discovery of novel loss-of-function variants; and investigation of remaining variants.Timepoint: Collection of data after 6 months of starting the study and analysis of data after 6 months of collection of data

Secondary

MeasureTime frame
The prevalence of common mutations in CF which involves F508del gene is reported to be 19-44% from Indian subcontinent. Rare mutations are estimated to be 30-50%. So far, no studies estimating the prevalence of cystic fibrosis in south Indian population is reported in the literature.Timepoint: 1year

Countries

India

Contacts

Public ContactTejaswi Chandra

Aster CMI Hospital

shrek_jt@yahoo.com9986309111

Outcome results

None listed

Source: CTRI (via WHO ICTRP) · Data processed: Feb 4, 2026