Health Condition 1: D67- Hereditary factor IX deficiency Health Condition 2: D66- Hereditary factor VIII deficiency
Conditions
Interventions
None listed
Sponsors
NIL
Eligibility
Inclusion criteria
Inclusion criteria: Persons with hemophilia, care givers (Mother, Fathers and close relatives) those associated for more than 2 years with the society, executive members of the chapters with >2 Years of experience as office bearer.
Exclusion criteria
Exclusion criteria: Females who are diagnosed with hemophilia, PwH who are not a member of a chapter, parents who are not living with PwH, non-residents of India.
Design outcomes
Primary
| Measure | Time frame |
|---|---|
| The proposed study aims at exploring the day to day life and the impact of hemophiliacs being a part of the hemophilia societyTimepoint: 16 months | — |
Secondary
| Measure | Time frame |
|---|---|
| The evidence of the positive impacts made on the life of PwH and their family by the hemophilia societyTimepoint: 12 months | — |
Countries
India
Contacts
Public ContactDr Sreejith Govindan
Melaka Manipal Medical College (Manipal Campus)
Outcome results
None listed