Health Condition 1: C419- Malignant neoplasm of bone and articular cartilage, unspecified Health Condition 2: C509- Malignant neoplasm of breast of unspecified site Health Condition 3: C729- Malignant neoplasm of central nervous system, unspecified Health Condition 4: C499- Malignant neoplasm of connective and soft tissue, unspecified Health Condition 5: C759- Malignant neoplasm of endocrine gland, unspecified Health Condition 6: C579- Malignant neoplasm of female genital organ, unspecified Heal
Conditions
Interventions
Intervention1: Physician awareness: Physicians and oncologists would be approached as per disease management groups for informing them regarding the study. We would take this opportunity to provide ba
Sponsors
Rima Sanjay Pathak
Eligibility
Inclusion criteria
Inclusion criteria: Inclusion Criteria (Patients/ Caregivers) 1. Patients and or their caregivers from the breast, gynecology, pediatric, central nervous system and colorectal disease management group who are =18 years of age and willing to participate in the study 2. Parents or caregivers of the pediatric patients 3. Can read at least 1 language in which the written informed consent and pamphlets are provided 4. Patients who have a confirmed diagnosis of cancer OR healthy individuals who are suspected or known carriers of a pathogenic variant in a cancer predisposing gene 5. Patients who can understand the language in which the survey is conducted and in which the information is provided in the pamphlets and/ the audio-visual aids Inclusion criteria (Physicians): 1. All physicians participating in the care of cancer patients and willing to consent for participation in the study and 2. All those that agree to allow access to their background analytics data and 3. Working at the Tata Memorial Centre
Exclusion criteria
Exclusion criteria: Exclusion Criteria (Patient/ Caregivers): 1. Those who have a life expectancy of =3 months 2. Pediatric patients younger than 18 years of age 3. Those who cannot understand written or spoken language in which the survey is served and the information is provided. 4. Those who cannot read the languages in which the pamphlets are provided. Exclusion Criteria (Physicians): 1. Those who do not permit access to their background analytics data
Design outcomes
Primary
| Measure | Time frame |
|---|---|
| Primary Objective (Patients): 1. Determine the impact of audio-visual aids and pamphlets on the awareness, attitudes and expectation of the patients Primary objective (Physicians): 1. Evaluate the impact of the cancer genetics training module on the referral rates and patterns of referrals to the cancer genetics clinic at the Tata Memorial Centre for 3 months after the planned interventionTimepoint: Baseline will be recorded 3 months prior to the intervention and )providing educational material) and for 3 months after providing the intervention (educational material) | — |
Secondary
| Measure | Time frame |
|---|---|
| Secondary objective (Patients): 1. Develop the audio-visual aids and pamphlets in Hindi, English, Marathi the commonly spoken languages for patients at TMC 2. Impact of intervention on the genetic testing acceptance rates among the patients and their family members 3. Impact on the compliance to surveillance protocols among the mutation carriers 4. Evaluate the utility of the information aids developed for the patients Secondary Objective(s): 1. Design and implement a mobile/ web-based hybrid application for healthcare professionals 2. Evaluate the user behavior within the application by using background analytics 3. Evaluate the improvement in the knowledge of healthcare professionals before and after training 4. Report the utility and user satisfaction 5. Identify factors associated with long term usage of the app Timepoint: 3 months before providing educational material and for 3 months after providing educational material | — |
Countries
India
Contacts
Public ContactDr Rima Sanjay Pathak
Tata Memorial Centre
Outcome results
None listed