Health Condition 1: D561- Beta thalassemia
Conditions
Interventions
Intervention1: Self Care Model for Children with Thalassemia Major with Routine Treatment
: Self Care Model Disease Orientation Definition
Description
Stages and Symptoms of Disease Treatment and
Sponsors
Dhara Bipin Joshi
Eligibility
Inclusion criteria
Inclusion criteria: Children who undergone Blood Transfusion who will be fulfilling the following criteria 1 Child who can read, write or understand Gujarati and Hindi. 2 Confirmed diagnosis of Beta Thalassemia Major and undergoing Blood Transfusion 3 Age between 8-18 years 4 Both Genders 5 Child and Parents who are willing to participate for the study.
Exclusion criteria
Exclusion criteria: 1 Child who is chronically ill
Design outcomes
Primary
| Measure | Time frame |
|---|---|
| The quality of life of children with thalassemia major will be improved with the implementation of self care model. HRQOL- SF 36 scale will be usedTimepoint: The quality of life of children with thalassemia major will be assessed at 6 month during each blood transfusion after implementation of self care model. | — |
Secondary
| Measure | Time frame |
|---|---|
| Assess Quality of life of children with thalassemia major.Timepoint: The quality of life of children with thalassemia major will be assessed at time of enrollment and up to 6 month during each blood transfusion after implementation of self care model. | — |
Countries
India
Contacts
Public ContactDhara Yagnang Vyas
Parul Institute of Medical Science and Research
Outcome results
None listed