FindTrial
Sign In

Quality of life of people with hemophilia

Quantitative and qualitative analysis of quality of life (QOL) of people with hemophilia in an Indian Setting

Status
Active, not recruiting
Phases
Unknown
Study type
Observational
Source
CTRI
Registry ID
CTRI/2021/02/031192
Enrollment
165
Registered
2021-02-10
Start date
Unknown
Completion date
Unknown
Last updated
2021-11-24

For informational purposes only — not medical advice. Sourced from public registries and may not reflect the latest updates. Terms

Conditions

Health Condition 1: D66- Hereditary factor VIII deficiency

Interventions

None listed

Sponsors

World Federation of Hemophilia
Lead Sponsor

Eligibility

Inclusion criteria

Inclusion criteria: Patient diagnosed with hemophilia A, B &C based on confirmatory factor assay will be included.

Exclusion criteria

Exclusion criteria: Patient will be not included if family member of the child or / care taker / patient do not give consent to participate in registry Suspected cases without confirmed diagnosis will also be excluded

Design outcomes

Primary

MeasureTime frame
severity of hemophilia with the five domains that describe the QOL through quantitative data analysis. reasons and complexities of their disease in-depth and will be able to assess the living environment of the pwh in a holistic manner.Timepoint: quality of life parameters will be assessed using questionnaires and structured interviews with all the participants twice during the study. This will be done during first year and later after one year.—

Secondary

MeasureTime frame
Perceptions about the quality of life of PwHTimepoint: This data will be collected once during the study period. This activity will be done during the second year—

Countries

India

Contacts

Public ContactSreejith Govindan

MAHE

g.sreejith@manipal.edu

Outcome results

None listed

Source: CTRI (via WHO ICTRP) · Data processed: Feb 4, 2026