Health Condition 1: C00-D49- Neoplasms
Conditions
Interventions
None listed
Sponsors
Pain Relief and Palliative Care Society
Eligibility
Inclusion criteria
Inclusion criteria: 1. All patients less than 18 years 2. AND Poor prognostic cancer which is defined as a. Stage IV cancer at diagnosis b. Progressive disease, either primary refractory, or following relapse c. Newly diagnosed cancer, child unfit for treatment due to poor general condition at presentation 3. AND Died during the study period (Jan 1, 2017-Dec 31, 2019) 4. AND Died either at healthcare facilities (hospital or hospice) OR died at home (only for children who received community-based palliative care services)
Exclusion criteria
Exclusion criteria: 1. Death at home where no community-based palliative care service was involved 2. Inadequate records (as defined in central document)
Design outcomes
Primary
| Measure | Time frame |
|---|---|
| Receipt of cancer-directed treatments (chemotherapy/radiotherapy) and high intensity care at the end of life(CPR, intubation/mechanical ventilation, renal replacement therapy (dialysis), parenteral nutrition, inotropes, terminal ICU admission)Timepoint: 01-01-2017 to 31-12-2019 | — |
Secondary
| Measure | Time frame |
|---|---|
| 1. Location and cause of death (disease vs treatment-related) 2. Presence of and treatments for pain and other symptoms at the end of life 3. Referral for or provision of specialist palliative care service and/or other forms of psychosocial support 4. Characteristics of communication with family about prognosis, treatment options and appropriate goals of care at end of life 5. Participating organizationsââ?¬â?¢ capacity and infrastructureTimepoint: 01-01-2017 to 31-12-2019 | — |
Countries
India
Contacts
Public ContactDr Gayatri Palat
MNJ Institute of Oncology and RCC and Founder Member Pain Relief and Palliative Care Society
Outcome results
None listed