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Involving Patients and Public in developing breast cancer risk communication tools

Co-Creating People-Centered Clinical Research Experience in SURAKSHA

Status
Active, not recruiting
Phases
Unknown
Study type
Observational
Source
CTRI
Registry ID
CTRI/2020/11/028980
Enrollment
40
Registered
2020-11-09
Start date
Unknown
Completion date
Unknown
Last updated
2021-11-24

For informational purposes only — not medical advice. Sourced from public registries and may not reflect the latest updates. Terms

Conditions

Health Condition 1: C50- Malignant neoplasm of breast

Interventions

None listed

Sponsors

Clinical Development Services Agency
Lead Sponsor

Eligibility

Inclusion criteria

Inclusion criteria: 1. Women who are undergoing or have completed treatment in the last year 2. Unaffected female relatives & Male family members / male partners 3. Women without cancer or Men who have no first degree relatives with cancer 4. Charity staff who make organizational decisions or are administrators of Indian cancer charities like the Indian Cancer Society. Clinicians will include the clinical investigators who are directly involved in the care of breast cancer patients

Exclusion criteria

Exclusion criteria: For patients and relatives, if the clinician who is responsible for the cancer care of the patient f eels that the patient or his/her family is too vulnerable emotionally to participate in the study at the time of recruitment.

Design outcomes

Primary

MeasureTime frame
Assess knowledge of breast cancer and its risk factors including genetic predisposition, perceptions around treatment/outcomes and awareness of any early detection/prevention strategies Assess the willingness and perceptions towards participating in breast cancer risk assessment research Understand the existing channels or sources of health information and media preferences for effective information sharing and communicationTimepoint: Baseline

Secondary

MeasureTime frame
Explore the best possible strategy for communicating risk to provide meaningful, relevant and accurate information, in clear and understandable terms targeted to a specific audience.Timepoint: Baseline

Countries

India

Contacts

Public ContactDivya Pillai

Clinical Development Services Agency (CDSA), Translational Health Science & Technology Institute

nitya.wadhwa@thsti.res.in9811142248

Outcome results

None listed

Source: CTRI (via WHO ICTRP) · Data processed: Feb 4, 2026