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Family centered care in Cerebral Palsy

The Effectiveness of Family Centered Approach through Capacity Building of caregivers of children with Cerebral Palsy on their Quality of Life and Family Empowerment

Status
Active, not recruiting
Phases
Phase 2
Study type
Interventional
Source
CTRI
Registry ID
CTRI/2019/08/020527
Enrollment
120
Registered
2019-08-02
Start date
Unknown
Completion date
Unknown
Last updated
2024-03-04

For informational purposes only — not medical advice. Sourced from public registries and may not reflect the latest updates. Terms

Conditions

None listed

Interventions

Intervention1: Family centered care: Family Centered Care in caregivers of children with Cerebral Palsy along with standard care for 12 weeks and will be followed upto 24th week. At the end of 12th an

Sponsors

Deepalaxmi Paresh Poojari Principle investigator
Lead Sponsor

Eligibility

Inclusion criteria

Inclusion criteria: For child Diagnosed cases of cerebral palsy by a Clinician and/ or Physiotherapist Age 4- 12 years For caregiver Primary caregiver of children with cerebral palsy with the ability to read and write in Kannada or English For mentor Anganwadi workers/Peer mentor/ASHA mentors Knowledge about the various government and non- government services and facilities and its access to the community Good language skills

Exclusion criteria

Exclusion criteria: For child Any systemic illness impending their participation in the intervention For caregiver Any physical disability or diagnosed major psychiatry illness impending their participation

Design outcomes

Primary

MeasureTime frame
Quality of Life of caregivers using WHOQLBref Empowerment of caregivers using the Family Empowerment Scale(FES) Measures of Process of Care (MPOC-20) Timepoint: 3point of time 0 week 12 week 24 week

Secondary

MeasureTime frame
Quality of Life of children using the Cerebral Palsy Quality of Life Quesionnaire (CPQOL Activity and Participation in children using Child & Adolescent Scale of Participation (CASP) Timepoint: 3 point of time 0 week 12 week 24 week

Countries

India

Contacts

Public ContactDR Shashikiran U

Manipal Academy of Higher Education

shashikiran.u@manipal.edu9008418171

Outcome results

None listed

Source: CTRI (via WHO ICTRP) · Data processed: Feb 4, 2026