Health Condition 1: D560- Alpha thalassemia Health Condition 2: D561- Beta thalassemia Health Condition 3: D562- Delta-beta thalassemia Health Condition 4: D570- Hb-SS disease with crisis Health Condition 5: D565- Hemoglobin E-beta thalassemia Health Condition 6: D67- Hereditary factor IX deficiency Health Condition 7: D66- Hereditary factor VIII deficiency Health Condition 8: D564- Hereditary persistence of fetal hemoglobin [HPFH] Health Condition 9: D578- Other sickle-cell disorders Health Con
Conditions
Interventions
None listed
Sponsors
Indian Council of Medical Research
Eligibility
Inclusion criteria
Inclusion criteria: Patient diagnosed with hemophilia A, B &C based on confirmatory factor assay will be included. Patient diagnosed to have beta thalassemia, sickle cell syndrome, other hemoglobinopathies based on results of Cation exchange HPLC, capillary zone electrophoresis or molecular methods will be included in the study.
Exclusion criteria
Exclusion criteria: Patient will be not included if family member of the child or / care taker / patient do not give consent to participate in registry Suspected cases without confirmed diagnosis
Design outcomes
Primary
| Measure | Time frame |
|---|---|
| Development of patient registry Future research purposeTimepoint: at Baseline, 3 months, 6 months and 12 months | — |
Secondary
| Measure | Time frame |
|---|---|
| Development of patient registryTimepoint: future research projects | — |
Countries
India
Contacts
Public ContactDr Dinesh M Nayak
Kasturba Medical College
Outcome results
None listed