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Exploring how do family members of adolescents with Down syndrome participate in social activities together as a family

Exploring â??family social participationâ?? of adolescents with Down syndrome: A qualitative descriptive study

Status
Active, not recruiting
Phases
Unknown
Study type
Observational
Source
CTRI
Registry ID
CTRI/2019/05/019485
Enrollment
10
Registered
2019-05-31
Start date
Unknown
Completion date
Unknown
Last updated
2021-11-24

For informational purposes only — not medical advice. Sourced from public registries and may not reflect the latest updates. Terms

Conditions

None listed

Interventions

None listed

Sponsors

Florance Angelin Newton
Lead Sponsor

Eligibility

Inclusion criteria

Inclusion criteria: Family members of adolescents with Down syndrome of 11-17 years will be included. The family members can be children and adults children-7-18 years & adults from 18 and above will be included.

Exclusion criteria

Exclusion criteria: Individuals having mental illness, cognitive impairment or any other disability will be excluded.

Design outcomes

Primary

MeasureTime frame
This study would help in understanding how the family members manage to participate in social activities, the facilitators and barriers to their family social participation and their emotions regarding their family social participation. Strategies used by families to manage social participation can be suggested to families who have difficulties in social participation. No Standardized outcome measures have been used. The obtained audio recordings will be analysed for results.Timepoint: JULY 2019 TO MARCH 2020—

Secondary

MeasureTime frame
NATimepoint: NA—

Countries

India

Contacts

Public ContactDrSumita Rege

Manipal College of Health professions

sumita.rege@manipal.edu9739131050

Outcome results

None listed

Source: CTRI (via WHO ICTRP) · Data processed: Feb 4, 2026