None listed
Conditions
Interventions
Intervention1: Semi-structured interview: The pediatric palliative care clinic runs under the Department of Palliative Medicine and is staffed by
specialist doctor, nurse and a child psychologist/ pla
study investigators will approach the potential parents and seek participation in the study.
Interested subjects will be administered with informed consent forms as required by IEC and will be
recruit
Sponsors
Tata Memorial Hospital
Eligibility
Inclusion criteria
Inclusion criteria: Hindi, Marathi or English-speaking parents with a child under the age of 18 with advanced cancer (defined as a cancer that had recurred and/or is refractory to therapy) Agreed to meet with the childâ??s oncology/ palliative care clinician to discuss the recurrent or refractory cancer Child is receiving/ received primary oncology care at our center or is coming for a second opinion
Exclusion criteria
Exclusion criteria: Participants who do not agree for the qualitative interview
Design outcomes
Primary
| Measure | Time frame |
|---|---|
| To prospectively examine the perceptions of parents of children with advanced cancer on the communication of prognosisTimepoint: only once after the interview has been done post giving informed consent | — |
Secondary
| Measure | Time frame |
|---|---|
| Demographic and clinical data of the children will be collected from medical records anonymously, and demographic data of the parents will be collected separatelyTimepoint: before/ after the interview | — |
Countries
India
Contacts
Public ContactMaryAnn Muckaden
Tata Memorial Centre
Outcome results
None listed