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Collection of patients data from persons with bleeding disorders for a registry.

Developing a World Bleeding Disorders Registry(WBDR)

Status
Active, not recruiting
Phases
Unknown
Study type
Observational
Source
CTRI
Registry ID
CTRI/2019/04/018666
Enrollment
350
Registered
2019-04-18
Start date
Unknown
Completion date
Unknown
Last updated
2021-11-24

For informational purposes only — not medical advice. Sourced from public registries and may not reflect the latest updates. Terms

Conditions

Health Condition 1: D67- Hereditary factor IX deficiency Health Condition 2: D66- Hereditary factor VIII deficiency

Interventions

None listed

Sponsors

Kasturba Hospital Manipal
Lead Sponsor

Eligibility

Inclusion criteria

Inclusion criteria: Persons diagnosed with Hemophilia A & B will be included

Exclusion criteria

Exclusion criteria: Patient will be not included if family member of the child or / care taker / patient do not give consent to participate in registry Suspected cases without confirmed diagnosis

Design outcomes

Primary

MeasureTime frame
Demographics Baseline characteristics Diagnostic data Medical history Complications comorbidities Inhibitor status Bleeding events Joint disease Treatment Hospitalization Mortality Timepoint: At the end of the study—

Secondary

MeasureTime frame
comorbidities Inhibitor status Bleeding events Joint disease Treatment Hospitalization MortalityTimepoint: At the end of the study—

Countries

India

Contacts

Public ContactDr Shantha Kumari

Melaka Manipal Medical College

annamma.kurien@manipal.edu9845821201

Outcome results

None listed

Source: CTRI (via WHO ICTRP) · Data processed: Feb 4, 2026