Health Condition 1: D498- Neoplasm of unspecified behavior of other specified sites
Conditions
Interventions
Intervention1: NA: NA
Control Intervention1: NA: NA
Sponsors
Tata Memorial Hospital
Eligibility
Inclusion criteria
Inclusion criteria: 1. All children less than 18 years of age newly diagnosed with a diagnosis of a Paediatric Rare Tumour ( as defined in Annexure 1 ) 2. Informed Consent to participate in the study 3. Children diagnosed/started on treatment elsewhere during the study period and referred for the continuation of therapy to the participating centre can be included 4. Cases who have been diagnosed within the study period but are deceased will be eligible.
Exclusion criteria
Exclusion criteria: Absence of conclusive diagnosis, either by histology or molecular diagnostics
Design outcomes
Primary
| Measure | Time frame |
|---|---|
| To study the incidence and epidemiology of specific paediatric Rare Tumours being diagnosed at multiple centres across the countryTimepoint: After diagnosis, Before Treatment,During treatment, After treatment. | — |
Secondary
| Measure | Time frame |
|---|---|
| 1.To record the management offered to these patients 2.To analyse outcome of these patients 3.To estimate the incidence and causes of Treatment Refusal and Abandonment (TR&A) in these patients Timepoint: After diagnosis, Before Treatment,During treatment, After treatment. | — |
Countries
India
Contacts
Public ContactDr Hemanth Kumar
Tata Memorial Hospital
Outcome results
None listed