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A registry based study on treatment and survival of Retinoblatoma diagnosed children patients from different parts of the world

Global Retinoblastoma Presentation 2017. - GRP

Status
Active, not recruiting
Phases
Unknown
Study type
Observational
Source
CTRI
Registry ID
CTRI/2018/07/014693
Enrollment
450
Registered
2018-07-02
Start date
Unknown
Completion date
Unknown
Last updated
2021-11-24

For informational purposes only — not medical advice. Sourced from public registries and may not reflect the latest updates. Terms

Conditions

Health Condition 1: null- All Retinobloastoma patients who were offered/received treatment of any type (i.e. focal therapy, surgery, chemotherapy, radiotherapy, palliative approach (i.e. no intervention)).

Interventions

None listed

Sponsors

None listed

Eligibility

Inclusion criteria

Inclusion criteria: Participating center: in which treatment-naïve Rb patients are seen and treated by any means. There is no lower or upper limit to the number of Rb patients seen in a center in order for it to become a participating center in the study. We are aiming to reach out and include as many Rb centers from around the world. Subjects: All Rb patients that presented to a participating center from 01/01/2017-31/12/2017 and were offered/received treatment of any type (i.e. focal therapy, surgery, chemotherapy, radiotherapy, palliative approach (i.e. no intervention)).

Exclusion criteria

Exclusion criteria: Patients that presented following primary treatment given/offered elsewhere.

Design outcomes

Primary

MeasureTime frame
To report on the presentation mode of children diagnosed with Rb throughout the world, during 2017, with special attention to intra- versus extraocular disease presentation. Timepoint: 01/01/2017-31/12/2017 data to be collected

Secondary

MeasureTime frame
NATimepoint: NA

Countries

Argentina, Armenia, Australia, Bangladesh, Benin, Brazil, Burundi, Canada, Chile, China, Cote d'Ivoire, Czech Republic, Democratic Republic of the Congo, Denmark, Ecuador, Egypt, Estonia, Ethiopia, Finland, France, Germany, Haiti, Honduras, Hungary, India, Indonesia, Iran (Islamic Republic of), Iraq, Ireland, Italy, Jamaica, Japan, Jordan, Kenya, Kyrgyzstan, Latvia, Lebanon, Lithuania, Malawi, Malaysia, Mali, Mexico, Morocco, Myanmar, Nepal, Netherlands, Nigeria, Pakistan, Panama, Paraguay, Peru, Philippines, Poland, Portugal, Republic of Korea, Russian Federation, Saudi Arabia, Singapore, Slovenia, South Africa, Spain, Sri Lanka, Sudan, Swaziland, Sweden, Switzerland, Thailand, Turkey, Uganda, Ukraine, United Arab Emirates, United Kingdom, United Republic of Tanzania, United States of America, Uzbekistan, Viet Nam, Yemen, Zambia, Zimbabwe

Contacts

Public ContactTushar Vora

Tata Memorial Hospital

tusharsvora@yahoo.com9920428153

Outcome results

None listed

Source: CTRI (via WHO ICTRP) · Data processed: Feb 4, 2026