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Study to assess the effectiveness of â??thalassemia care educational packageâ?? on health care behaviour of parents having children of thalassemia major

A quasi-experimental study to assess the effectiveness of â??thalassemia care educational packageâ?? on health care behaviour of parents having children of thalassemia major at APC, PGIMER, Chandigarh, 2016-2018.

Status
Recruiting
Phases
Unknown
Study type
Interventional
Source
CTRI
Registry ID
CTRI/2018/03/012397
Enrollment
60
Registered
2018-03-07
Start date
Unknown
Completion date
Unknown
Last updated
2021-11-24

For informational purposes only — not medical advice. Sourced from public registries and may not reflect the latest updates. Terms

Conditions

None listed

Interventions

Intervention1: Thalassemia Care Educational Package: This educational package aims at educating parents about thalassemia and care of children with thalassemia major with the help of AV aids. Control

Sponsors

NONE
Lead Sponsor

Eligibility

Inclusion criteria

Inclusion criteria: 1. Parents having â??children (upto 12 years) of Thalassemia major receiving blood transfusion at least once a month, on iron chelation therapyâ??. 2. Can read and write in Hindi Punjabi.

Exclusion criteria

Exclusion criteria: Those who are not giving consent.

Design outcomes

Primary

MeasureTime frame
Improvement of health care behaviour of parents having children of thalassemia major.Timepoint: 2 months after intervention.—

Secondary

MeasureTime frame
Improvement in disease knowledge, treatment adherence, positive perception and child care activities.Timepoint: 2 months after intervention.—

Countries

India

Contacts

Public ContactUrmila

National Institute of Nursing Education, PGIMER, Chandigarh

Sanitasuni@gmail.com9876269615

Outcome results

None listed

Source: CTRI (via WHO ICTRP) · Data processed: Feb 4, 2026