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Effectiveness of Hemophilia Education Program) on quality of life and clinical outcomes of children and young people with hemophilia.

Effectiveness of Comprehensive Hemophilia Education Program (CHEP) on health related quality of life and clinical outcomes of children and young people with hemophilia in selected hemophilia clinics of Karnataka. - Nil

Status
Active, not recruiting
Phases
Unknown
Study type
Interventional
Source
CTRI
Registry ID
CTRI/2018/02/011729
Enrollment
160
Registered
2018-02-06
Start date
Unknown
Completion date
Unknown
Last updated
2021-11-24

For informational purposes only — not medical advice. Sourced from public registries and may not reflect the latest updates. Terms

Conditions

Health Condition 1: D66- Hereditary factor VIII deficiency Health Condition 2: null- Quality of life, clinical outcomes, Knowledge of patients with hemophilia

Interventions

Intervention1: Manipal Hemophilia Society: patients with severe and moderate hemophilia attending summer camps Control Intervention1: Hemophilia society ,Bangalore: Patients with severe and moderate h

Sponsors

Manipal hemophilia society
Lead Sponsor

Eligibility

Inclusion criteria

Inclusion criteria: Patients with moderate and severe hemophilia

Exclusion criteria

Exclusion criteria: patients with mild hemophilia

Design outcomes

Primary

MeasureTime frame
Health related quality of lifeTimepoint: baseline, 6 months, 12 months,18 months—

Secondary

MeasureTime frame
clinical outcomes-hemophilia joint health scoreTimepoint: 0 months,18 months;knowledge on hemophiliaTimepoint: 0 months, 6 months,12 months,18 months;perceived barriers related to hemophilia treatmentTimepoint: Baseline—

Countries

India

Contacts

Public ContactDinesh Nayak

Dr.TMA Pai Hospital Udupi

dinesh_nayak@yahoo.com

Outcome results

None listed

Source: CTRI (via WHO ICTRP) · Data processed: Feb 4, 2026