Health Condition 1: null- quality of life among care givers and children with advanced cancer receiving palliative care at tertiary care centre
Conditions
Interventions
None listed
Sponsors
AIIMS
Eligibility
Inclusion criteria
Inclusion criteria: Age 2-16 years. Either gender Diagnosed with cancer Parents have agreed to participate in the study and have signed written informed consent. Children presenting to pain and palliative care clinic or admitted to palliative care ward.
Exclusion criteria
Exclusion criteria: Diagnosed psychiatric disorder in caregivers Parents refusal to give consent/assent to participate in the study
Design outcomes
Primary
| Measure | Time frame |
|---|---|
| To assess the quality of life among caregivers and children with cancer attending palliative care clinic of a tertiary care centre.Timepoint: At the time of out patient clinic visit or at the time of ward admission to palliative care ward | — |
Secondary
| Measure | Time frame |
|---|---|
| Symptom burden in paediatric patients with cancer in palliative care setup Family concerns in paediatric palliative care Effect of socioeconomic status, type of therapy, stage of disease and education on QOL Mutlidisciplinary involvement in children with cancer Overall satisfaction of parents with treatment of their children with cancer.Timepoint: At the time of outpatient clinic visit or at admission in palliative care ward | — |
Countries
India
Contacts
Public ContactDR RAKESH GARG
All India Institute of Medical Sciences (AIIMS); New Delhi
Outcome results
None listed