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A Study on Experiences Generated by the Parents and Caregivers of Children Suffering from Retinoblastoma a Type of Cancer of Eye in India

Experiences of the Indian Parents and Caregivers about Caring for a Child with Retinoblastoma: An Interpretative Phenomenological Analysis

Status
Active, not recruiting
Phases
Unknown
Study type
Observational
Source
CTRI
Registry ID
CTRI/2017/05/008653
Enrollment
16
Registered
2017-05-25
Start date
Unknown
Completion date
Unknown
Last updated
2021-11-24

For informational purposes only — not medical advice. Sourced from public registries and may not reflect the latest updates. Terms

Conditions

Health Condition 1: null- Retinoblastoma

Interventions

Intervention1: NIL: NA Control Intervention1: Nil: NA

Sponsors

Tata Memorial Centre Research Administration Council
Lead Sponsor

Eligibility

Inclusion criteria

Inclusion criteria: 1.Indian nationals 2.Parents or caregivers of the child with retinoblastoma caring for at least 12 months 3.Able to speak in Hindi, Marathi or English Willing and able to consent

Exclusion criteria

Exclusion criteria: None

Design outcomes

Primary

MeasureTime frame
To study the experiences of the Indian parents and caregivers using semi structured interviewsTimepoint: After Consenting and after interview administered completion of surgical intervention—

Secondary

MeasureTime frame
NATimepoint: NA—

Countries

India

Contacts

Public ContactDR NAVEEN SALINS

Tata Memorial Hospital

naveensalins@gmail.com

Outcome results

None listed

Source: CTRI (via WHO ICTRP) · Data processed: Feb 4, 2026