Health Condition 1: null- Adolescents with advanced cancer on palliative care
Conditions
Interventions
Intervention1: Diary writing,semi structured interview: First visit:
1. Enrolment of patient after seeking informed consent
2. Rapport-building
3. Explaining and assigning task of â??diary-writing for
Sponsors
Tata Memorial Hospital intramural grant
Eligibility
Inclusion criteria
Inclusion criteria: • Adolescents (13-17 yrs.) suffering from advanced Cancer with adequate symptom control and have been referred to palliative care will be recruited with assent of ill children and consent of their parents or primary care givers • Adolescent patients who can read, write and communicate in Hindi/ English/ Marathi language • Adolescent patients recruited will be from Mumbai i.e. locals, or out station patients staying in Mumbai with some close relatives or in an accommodation facilitated through the hospital or patients who plan to be in Mumbai throughout the duration of the study. • Patients with fair general condition and doing well going to school or college with performance score ECOG 0 -2
Exclusion criteria
Exclusion criteria: • Patients who cannot read, write and communicate in Hindi/ English/ Marathi
Design outcomes
Primary
| Measure | Time frame |
|---|---|
| To provide adolescents a means to express their innermost thoughts and feelings without difficulty.Timepoint: Day 0, 30 ,45 | — |
Secondary
| Measure | Time frame |
|---|---|
| 1. To elicit their end of life concerns. 2. To understand what are their expectations from the professional team, friends and family with regard to care and support Timepoint: Day 0, 30 ,45 | — |
Countries
India
Contacts
Public ContactDr MA Muckaden
Tata Memorial Hospital
Outcome results
None listed