Co-design of the Cancer Nursing Compendium for Genomic-Informed Care (NGenCare Cancer Co-design)

Ethics 1 Stage 1: Knowledge creation and stakeholder engagement - A series of community engagement events will be held for the purpose of commencing exploratory dialogues with consumers regarding genomic care. Consumers and their families or carers who are waiting in the Cancer Care Services Outpatient Clinics will be invited to engage in an informal discussion with a member of the research team/consumer representative, who will act as a facilitator utilising open-ended questions and discussion prompts from a set guide. Verbal consent will be obtained before a small amount of demographic information will be requested. It is expected that each discussion may take between 5 and 15 minutes. A suite of artefacts will be compiled to present during the planned co-design workshops. Stakeholder Interviews and Focus Group Feedback: Participants will include health professionals (clinicians) and health services staff. They will be purposively selected with the assistance of staff supervisors to ensure a broad range of stakeholder experiences and perspectives from a range of health facilities. Written consent will be obtained from participants and a small amount of their demographic and clinical or health service role information will be obtained. A set guideline for the semi structured interview / focus group questions will be used by the researchers. Participants will provide feedback and identify potential key touch points in the patient journey based on the persona’s and narrative videos (related to genomic care) they watch. Participants will also provide feedback regarding similarities or other to the current genomic care pathway in their clinical area. This will assist in identifying barriers and opportunities within services, as well as the resources and system change necessary to implement the NGenCare Compendium. It is planned that there will be 6 to 10 participants in total in the interviews/focus groups and each discussion will take approximately 30minutes. With the participants’ permission the interviews will be audio recorded. Stage 2: Co-design workshops – the aim is to recruit up to 25 participants. Participants will include both consumers and health professionals (clinicians). Consent will be obtained via a co-design workshop specific PICF. The workshops will be facilitated by a member of the research team and will be conducted over an 8-12 week period as follows: • Phase 1 (Sessions 1–3) will focus on knowledge sharing and prioritisation of problems. Using Stage 1 artefacts to establish a common experiential foundation and begin prioritisation and brainstorming of intervention components. First session online synchronous 3hours, session 2 asynchronous 1hour, session 3 online 2hours. • Phase 2 (Sessions 4–7) will engage small cross-disciplinary working groups to develop NGenCare components e.g., educational resources, clinical guidance tools, workflow modifications, and communication strategies. This will be informed by existing toolkits and phase 1 findings. Session 4 asynchronous 1hour, session 5 online synchronous 2hours, session 6 asynchronous 2hours, session 7 online synchronous 2hours. • Phase 3 (Sessions 8–10) will focus on consolidating components into a coherent, implementable intervention package, identifying necessary system changes, and establishing success metrics and implementation timelines. Session 8 online synchronous 2hours, session 9 asynchronous 1hour, session 10 online synchronous 2hours. The Teams’ sessions will be recorded and transcribed. Microsoft Copilot will be used to generate thematic summaries of discussion content as sessions progress. Microsoft Copilot is QUT's institutionally approved and licensed generative artificial intelligence (AI) solution, operating under Microsoft's commercial data protection framework. This will be done with participants’ consent.