None listed
Conditions
Brief summary
Admission to the Neonatal Intensive Care Unit (NICU) can be a stressful and challenging experience for families. The Neo Bloom study aims to explore the experiences of parents and the perspectives of neonatal healthcare professionals to better understand families' educational, communication and emotional support needs. Participants will complete an online survey, and some will be invited to participate in a collaborative workshop to help co-design concepts for a future digital support resource. We hypothesise that understanding parent and staff experiences through a co-design approach will identify opportunities to improve family-centred care and inform development of a practical digital support resource for NICU families.
Interventions
Condition/exposure: Admission to the Neonatal Unit is often associated with emotional distress, uncertainty and unmet educational and support needs for families. This study explores parent experiences and staff perspectives to inform the co-design of a family-centred digital support resource. Participants will complete one study phase or both phases depending on eligibility and interest. Phase 1 – Online Survey Parents and neonatal healthcare professionals will complete a single anonymous online questionnaire administered via Microsoft Forms. Phase 2 - The workshop was conducted 2 months after the final data collection from phase 1. The survey includes: - demographic questions - multiple-choice and Likert-scale questions - optional free-text responses exploring experiences, communication, education, emotional support, family-centred care, discharge preparation, and preferences for digital resources. Estimated completion time: 15–20 minutes Observation period: One-time survey completed during the recruitment period. Phase 2 – Collaborative Co-design Workshop A purposive sample of parents and multidisciplinary neonatal staff who indicate interest during Phase 1 will be invited to attend a collaborative workshop. Participants will: - discuss findings from Phase 1 - share experiences of the neonatal journey - participate in facilitated experience-mapping activities - identify unmet support needs - generate ideas for future family-centred digital resources. The workshop will be facilitated by members of the Neo Bloom research team. Duration: One workshop, approximately 3 hours, single attendance only Workshop discussions will be audio-recorded and supplemented by facilitator notes and written activities for qualitative analysis.
Sponsors
Eligibility
Inclusion criteria
Any family who had an infant admitted to the SCUH NICU for 7 days or more at any gestation within the past 3 years willing to share their experiences and participate in surveys and/or a collaborative workshop. Both inborn and out born infants who were then transferred to SCUH will be included. All medical and nursing/midwifery staff who have been working in the SCUH neonatal unit for 6 months or longer Participants must be able to communicate in English to take part in the study. Translation or interpreter support will not be provided.
Exclusion criteria
Families who had an infant admitted to the NICU for less than 7 days. Families experiencing acute distress or trauma that would make participation difficult. Families where a neonatal or infant death has been identified through screening of medical records at the time of recruitment will be excluded from the study. Medical and nursing staff who have worked in the SCUH NICU for less than 6 months. Staff members with no direct experience in neonatal care or parental support. Individuals unable to provide informed consent.