Pain education and self-management for women with suspected endometriosis

The intervention is an online, self-paced pain science education and self-management education package. The intervention will be hosted on the EndoZone website and contains a series of self-paced modules. The modules cover topics such as the basic pathophysiology of endometriosis and pain, pelvic anatomy, changes in the body systems when pain persists, and self-management strategies such as movement, stress management, and identification and management of triggers. Modules contain various activities to facilitate learning. Examples include educational videos on the anatomy of the pelvis; videos of patient stories; graphics on the biology of pain; and interactive tasks such as pair-matching and multiple choice questions. These activities have been specifically developed for this study. Content was devised to facilitate learning of the key education concepts outlined by Mardon et al. (2024), in addition to unpublished data by Mardon et al. (2024) collected specifically for this trial. Participants will access the intervention individually and be required to complete the intervention in the month prior to their first laparoscopy for suspected endometriosis. The intervention takes approximately 6 hours to complete. Intervention adherence will be assessed at 2-weeks pre-laparoscopy (i.e., 2-weeks after access to the intervention is provided to participants). Where participants have not completed =50% of the intervention, they will receive a reminder telephone call. Participants in the intervention group will continue to receive standard care through their chosen medical provider. This trial will be run separately, and in addition to the standard care they receive.