None listed
Conditions
Brief summary
"Losing their licence" can be one of the most difficult challenges that comes with the diagnosis of dementia. Stopping driving can lead to more problems with isolation and mood. To address this issue, we have developed the "Dementia and Driving Toolkit" (2023 EXP 12951) to encourage transport planning in the early stages of mild dementia, giving individuals and their families more control and choice. This approach aims to help individuals continue to engage in important activities after retirement from driving. By developing transport plans early on, individuals can become comfortable with other forms of transportation before driving cessation becomes necessary. We plan to use interviews and diaries to better understand the experience and challenges that patients and their families face during the transition to other forms of transportation and use the findings to provide practical advice for effective transport planning and counselling.
Interventions
Exposure: Discussion-based retirement from driving session
Description: Participants meet individually with a support professional for a structured planning session lasting approximately 60-90 minutes. This session uses the specially designed "Dementia and Driving Toolkit" to create a personalised transportation plan. Participants may attend alone or with supporters of their choice. This may include trying out an alternate transportation methods such as getting a ride with a church member to the
Exposure: Discussion-based retirement from driving session Description: Participants meet individually with a support professional for a structured planning session lasting approximately 60-90 minutes. This session uses the specially designed "Dementia and Driving Toolkit" to create a personalised transportation plan. Participants may attend alone or with supporters of their choice. This may include trying out an alternate transportation methods such as getting a ride with a church member to the weekly church service they had previously driven to. Support Professionals: The counsellor is a support professional from an organisation involved in the person’s care and support. Adherence: Participation in the transportation plan is voluntary, and participants will describe their experince, including barriers in the one-to-one follow-up interview.
Sponsors
Burwood Academy Trust
Study design
Allocation
Non-randomised trial
Intervention model
Single group
Primary purpose
Educational / counselling / training
Eligibility
Sex/Gender
All
Age
18 Years to No maximum
Healthy volunteers
No
Inclusion criteria
- Has a diagnosis of dementia - The dementia is mild /early-stage, by clinical judgement of service provider organisations - Is actively driving
Exclusion criteria
- Any doubt about the person’s capability to give informed consent, as indicated for example by activated enduring power of attorney or professional opinion - The dementia is moderate or severe stage by clinical judgement of service provider organisations - Is not able to converse in English without a translator - Has surrendered their driver’s licence - Has stopped driving
Outcome results
None listed