None listed
Conditions
Brief summary
This study aims to assess the feasibility of a mediterranean meal box for people living with Huntington's disease and their family. We hypothesise the meal box will be safe and feasible for this community. We also expect it to improve cooking behaviours and quality of life.
Interventions
A Mediterranean meal box intervention will be provided over one-week to individuals with symptomatic Huntington’s disease. Meal boxes will be delivered on a Sunday by a commercial provider operating in Victoria and New South Wales. Each box will contain ingredients and recipes to prepare four main meals as well as kitchen safety tips and cooking strategies tailored to the needs of people living with Huntington’s disease. Participants will be asked to prepare the four meals during the working week using the provided ingredients and recipes. Throughout the intervention, participants will be asked to take photos of their ingredient set-up before cooking, the meal produced, the mess created during the cook and post eating and any food that was not eaten. They will also be asked to rate the difficulty of cooking and taste of the meal and provide any additional feedback they wish. Examples of Meals and Ingredients Participants will be presented with Mediterranean-style meals such as (only examples): Grilled salmon with quinoa salad and roasted vegetables Chickpea and vegetable stew with wholegrain bread Chicken and lentil tagine with seasonal greens Greek-style salad with feta and olives served alongside a vegetable omelette Key ingredients include olive oil, fresh vegetables (capsicum, tomato, leafy greens), legumes (chickpeas, lentils), wholegrains (quinoa, brown rice), lean meats or fish, fresh herbs and citrus. Anticipated Preparation and Cooking Time Each meal is expected to take less than 30 minutes to prepare and cook, ensuring they are practical and accessible for people living with Parkinson’s disease and their families. Batch Cooking The meals provided in the meal box will not be batch-cooked. Instead, they will be designed for fresh preparation each day using pre-portioned ingredients. This approach supports flexibility in meal preparation and helps maintain food safety standards. Advice for Remaining Main Meals Participants will not receive specific guidance for the remaining meals outside of the provided meal box recipes. They will be able to choose what to cook or eat for their other main meals, whether that involves preparing different meals at home or eating out. Preparation of Kitchen Safety Tips and Cooking Strategies Kitchen safety tips and cooking strategies for the meal box will be developed by the occupational therapist on the research team. These resources will be tailored to the needs of people living with Parkinson’s disease, ensuring a safe and supportive cooking experience.
Sponsors
Study design
Eligibility
Inclusion criteria
Forty HD families will be identified through existing research databases, Huntington's Australia and local clinicians and will be screened for study eligibility. Families will be required to have at least one member of the household with a neurologist-confirmed diagnosis of HD and experiencing symptoms of the disease. The person living with HD must be prepared and have the physical and cognitive capacity (clinician supported) to undertake cooking independently or with support throughout the duration of the intervention.
Exclusion criteria
Exclusion criteria will include lack of access to functional food storage and cooking facilities within the home, the requirement for texture-modified foods due to later-stage HD and restrictive food allergies.