None listed
Conditions
Brief summary
The aim of this study is to determine the impact of a online intervention (Recapture Life) to teach adaptive cognitive-behavioural coping skills to promote resilience in early survivorship. Who is it for? You may be eligible for this study if you are a young cancer survivor who have finished treatment, male or female, aged between 13 -39 years old. Also, fluent in English, able to provide consent and have access to internet and a suitable computer. Study details Participants who choose to participate in Recapture Life received six weekly 90 minute sessions delivered online. Each group consisted of a facilitator plus 3-6 AYAs with mixed childhood cancer diagnoses and genders. Sessions were delivered through a secure, password-protected video conferencing software. Each 90-minute module included both psychological skills and cancer related content, applying CBT techniques to the key domains of concern identified by previous studies, including fear of cancer recurrence and changes to activity levels The study design involves simple pre- and post-intervention measures. AYA participants completed questionnaires at intake (T1), and six-months later, after the completion of the intervention and the booster session (T2). These were completed online through a secure questionnaire portal. Questionnaires obtained participant demographic data, assessed Quality of Life (the primary outcome variable), psychological distress, and peer support. It is hoped that findings from this study will provide skills-based support for adolescents and young adult cancer survivors.
Interventions
The study builds on a recent RCT comparing the impact of a theoretically grounded, online intervention (Recapture Life) to teach adaptive cognitive behavioural therapy (CBT) coping skills to promote resilience in early survivorship. Participants who choose to participate in Recapture Life received six weekly 90 minute sessions delivered online. Each group consisted of a facilitator plus 3-6 adolescents and young adults (AYA)s with mixed cancer diagnoses and genders. Sessions were delivered thr
The study builds on a recent RCT comparing the impact of a theoretically grounded, online intervention (Recapture Life) to teach adaptive cognitive behavioural therapy (CBT) coping skills to promote resilience in early survivorship. Participants who choose to participate in Recapture Life received six weekly 90 minute sessions delivered online. Each group consisted of a facilitator plus 3-6 adolescents and young adults (AYA)s with mixed cancer diagnoses and genders. Sessions were delivered through a secure, password-protected video conferencing software. Each 90-minute module included both psychological skills and cancer related content, applying CBT techniques to the key domains of concern identified by previous studies, including fear of cancer recurrence and changes to activity levels. Participants will also complete a one-on-one booster session with their group facilitator six weeks after the completion of session six. The purpose of the booster session was to help the participants to review their past six weeks in light of skills/psychoeducation learnt., and to prompt them to consider what thoughts and feelings both positive and negative/challenging situations have brought up, and times they have used any skills from Recapture Life. Staff were eligible to deliver Recapture Life if they were a registered healthcare professional (including but not limited to psychologists, clinical psychologists, and nurses); had prior experience in the delivery of a cognitive-behaviour therapy group treatment program; and were determined by the community organisation as having sufficient experience to deliver the program. . The study design involves simple pre- and post-intervention measures. AYA participants completed questionnaires at intake (T1), and six-months later, after the completion of the intervention and the booster session (T2). These were completed online through a secure questionnaire portal. Questionnaires obtained participant demographic data, assessed Quality of Life (the primary outcome variable), psychological distress, and peer support.
Sponsors
University of New South Wales
Study design
Allocation
Non-randomised trial
Primary purpose
Prevention
Eligibility
Sex/Gender
All
Age
13 Years to 39 Years
Healthy volunteers
No
Inclusion criteria
* Eligible participants will be (1) Young cancer survivors who have finished treatment and are aged 13-39; (2) Able to give informed consent; (3) Fluent in English; (4) able to provide the name and contact details of a trusted health professional (e.g., local general practitioner, family doctor or hospital social worker); and 5) be able to access the Internet in a private location. Young people who have previously relapsed (and are finished relapse treatment) will be encouraged to participate. Internet access and a suitable computer set-up is a requirement to participate in Recapture Life-AYA. This includes access to a computer/laptop which has a microphone and web-camera, and is located such that the participant will be able to participate in the sessions comfortably and in a private and uninterrupted capacity. AYAs without access to these resources will be able to borrow a laptop, web-camera, microphone and/or wireless internet connection device for the duration of the study (the costs of which are covered by a project grant). The equipment and internet needs of all AYA participants will be assessed at the initial telephone intake interview,and access issues managed on a case-by-case basis.
Exclusion criteria
Individuals may not participate if they (1) cannot speak English; (2) exhibit suicidal intent, psychotic features, or substance dependence; (3) are receiving active treatment, or palliative care. This includes if a patient has recently relapsed and is still in active treatment; they and their family will be excluded, as their needs will be difficult to manage within the protocol, and their inclusion might also negatively affect others in their group.
Outcome results
None listed