None listed
Conditions
Brief summary
The primary purpose of this study is to examine the opinions of patients and their caregiver/support person on the clinical care that is provided following a diagnosis of stomach, oesophageal or bowel cancer. Secondary aims will determine the acceptability and preferences for the use of blood tests to monitor these cancers and explore factors that may affect acceptability. Who is it for? Participants in this study include adults who have received treatment for stomach, oesophageal, or bowel cancer at Flinders Medical Centre, Noarlunga Health Service, or The Queen Elizabeth Hospital. It will also include a caregiver or support person of their choosing. Study details: Eligible patients will be sent a study information pack inviting them and a caregiver/support person of their choosing to complete a survey. All patients who respond to this initial survey will be sent a letter approximately one month later inviting them to complete another survey. The surveys will contain items assessing participants’ unmet needs from previous clinical care experiences, their acceptability and preferences for blood tests to monitor gastrointestinal cancers, psychosocial impacts, health beliefs, preferences for treatment decision making, and trust in the cancer care team. This research will provide a better understanding of the unmet information and supportive care needs of South Australians affected by gastrointestinal cancer, including patients and their caregivers/support persons. We also aim to explore the trust and acceptability of clinical monitoring tools for gastrointestinal cancers, particularly blood tests. We anticipate that participants will have varying degrees of trust in the test, with their caregivers demonstrating similar levels of trust. It is predicted that certain factors will influence individuals’ acceptability of using blood tests for cancer monitoring, including their attitudes towards blood testing, trust in their cancer care team, and their willingness to engage with new medical technology.
Interventions
This study will use surveys to assess the unmet clinical care needs and testing preferences of individuals who have had treatment for a gastrointestinal cancer (oesophageal, stomach or bowel cancer), and a nominated caregiver/support person of their choosing. Eligible patients will be identified from the gastrointestinal cancer clinics at approved study sites (Flinders Medical Centre, Noarlunga Health Service, and The Queen Elizabeth Hospital), where patients will be invited to complete two surv
This study will use surveys to assess the unmet clinical care needs and testing preferences of individuals who have had treatment for a gastrointestinal cancer (oesophageal, stomach or bowel cancer), and a nominated caregiver/support person of their choosing. Eligible patients will be identified from the gastrointestinal cancer clinics at approved study sites (Flinders Medical Centre, Noarlunga Health Service, and The Queen Elizabeth Hospital), where patients will be invited to complete two surveys, one provided at the time of study invitation and the other provided within one month of receiving a response to the first survey (each survey taking approximately 15 minutes to complete). Patients will also be asked to nominate a caregiver or support person of their choosing to complete a single survey (taking approximately 30 minutes to complete). Survey questions will measure participants’ opinions of their previous clinical care experiences, and will assess their preferences for blood biomarker tests to monitor gastrointestinal cancers, along with psychosocial impacts (e.g., fear of cancer recurrence), health beliefs, preferences for treatment decision making, and trust in their cancer care team.
Sponsors
Flinders University of South Australia
Eligibility
Sex/Gender
All
Age
18 Years to No maximum
Healthy volunteers
No
Inclusion criteria
Eligible participants include those who are: 1) over 18 years of age; 2) willing to complete up to two surveys; 3) have a previous diagnosis of oesophageal, stomach or bowel cancer OR 4) have cared for or supported someone who has a history of one of the cancers named above.
Exclusion criteria
Individuals will not be considered for study enrolment if they are: 1) patients in the palliative phase of their cancer; OR 2) unable to provide informed consent or complete the survey.
Outcome results
None listed