Survey of Patient Engagement and Attitudes towards Key research priorities in Lung cancer - korero tahi

Patient Questionnaire This is a single arm observational study. Participants attending an in-person medical assessment will be provided a Patient Information Sheet (PIS) when the check in with the receptionist. The PIS will be provided in the format of a printed leaflet which with information about participation in the study and a range of contact details to reach study investigators with questions and to access cultural support if required. The patient will retain the PIS for their own records. An investigator will be in attendance at all clinics to provide assistance to participants and answer questions. Patients who indicate they wish to participate will be offered the survey in an electronic format on tablet computer. Where the survey is completed electronically, the consent form will also be completed electronically on the same device. Electronic consent will be stored securely as a .pdf document which will be archived and stored securely, separate to the results of the survey, in accordance with the data management plan. A paper consent form and survey, with identical text and content, will also be available and can be offered to any patients who are not able to complete the electronic version. Investigators will preferentially offer the electronic edition whenever possible in order to increase the efficiency and accuracy of data collection. In this survey, the PIS will be provided separately from the consent form, in order that the patient can retain patient information and contact details, whilst allowing for consent to be incorporated into the electronic survey. The questionnaire contains a total of 8 questions, covering four topics. We anticipate the survey can be completed in 5-10minutes. It is designed to be completed by the participant themselves, or with assistance from whanau (family). We anticipate the PIC and questionnaire can be completed whilst in the clinic waiting room, without any impact on standard clinical care. Questions include responses recorded on a Likert scale. Questions which include the option for free text answers will be reviewed by the investigators in order to inform the content and design of future studies but will not be formally assessed with qualitative analysis. The title of the study utilises the Te Reo Maori words 'korero tahi', which can be translated as 'taking together'. Te Reo Maori is an official language of Aotearoa/New Zealand, the jurisdiction in which the study will take place. Inclusion of the maori population is a priority for the investigators of this study. We have intentionally utilised Maori language in title of this study to forward the goal of inclusion and participation.