Impact of CP-KASP (Cerebral Palsy Knowledge, Advocacy Skills, and Support Program) on parenting stress, empowerment and efficacy, and quality of life in caregivers of children with cerebral palsy.

CP-KASP is a co-designed peer-to-peer delivered knowledge and support platform to equip families of young children with cerebral palsy (CP) to optimise and improve their engagement and experience with the National Disability Insurance Scheme (NDIS) in Australia. The content of CP-KASP will be determined by the co-designers, but it is envisaged that it will cover: (1) advocacy skills; (2) systems navigation of the NDIS; (3) evidence-based early intervention in CP; (4) setting therapy goals; (5) considerations for transition to primary school. CP-KASP will be delivered online (zoom) to groups of up to 10 caregivers. Content will include webinars and interactive sessions. Sessions will be for 2 hours/week over a 6 week period. The co-design process commences with separate focus groups with consumer co-designers (n=10) and allied health co-designers (n=10) . The aim of the focus groups is to explore knowledge, skills, and support needs of caregivers of children with CP navigating the NDIS, understand CP specific knowledge and support needs to shape NDIS care packages for evidence-based early intervention, understand preferred methods of accessing information/supports. Results from this phase will inform the next co-design phase. A series of 8 workshops will be conducted, with co-designers working in small groups to develop the content for modules of CP-KASP. This could include content to build advocacy skills and CP specific evidence-based modules. These workshops will define the overarching program framework (e.g. length of time, mode (i.e webinars), content and format for interactive peer-led sessions. Fidelity: Fidelity checklists will be developed, related to content delivery of CP-KASP. The following outcomes will be captured: (a) number of sessions attended; (b) percentage of content per session delivered as intended. An a priori cut-off score for high fidelity of delivery was established as greater than 80%, moderate as between 50% and 80% and low less than 50% of content delivered.