None listed
Conditions
Brief summary
This study aims to examine the feasibility of a mobile application to collect follow up health data about Hodgkin Lymphoma survivors. Who is it for? You may be eligible to participate in this study if you are a patient aged 18 years or over, and must have received treatment for histologically confirmed classical HL according to the WHO classification. Study details Participants will enter their Hodgkin treatment and lymphoma response information, then complete a quesitonnaire on their current medical health including cardiac, respiratory, fertility, endocrine health. It is hoped that the results of this trial will help improve the lives of HL survivors.
Interventions
Participants will receive access to the MyHodgkin MyHealth mobile app as they are enrolled on the study. The condition we are observing is Hodgkin Lymphoma and its side effects following treatment.
Participants will enter their Hodgkin Lymphoma treatment and response information, then complete a questionnaire on their current medical health including cardiac, respiratory, fertility, endocrine health. The Questionnaires may take 30-60 minutes and does not need to be complete in one session.
Upda
Participants will receive access to the MyHodgkin MyHealth mobile app as they are enrolled on the study. The condition we are observing is Hodgkin Lymphoma and its side effects following treatment. Participants will enter their Hodgkin Lymphoma treatment and response information, then complete a questionnaire on their current medical health including cardiac, respiratory, fertility, endocrine health. The Questionnaires may take 30-60 minutes and does not need to be complete in one session. Updates are requested every 6 months during the overall duration of the study with is 5 years for the pilot.
Sponsors
Sydney Local Health District
Study design
Allocation
Non-randomised trial
Primary purpose
Educational / counselling / training
Eligibility
Sex/Gender
All
Age
18 Years to No maximum
Healthy volunteers
No
Inclusion criteria
1. Age equal or greater than 18 years 2. Participants must have received treatment for histologically confirmed classical HL according to the WHO classification 3. Sufficient digital and English literacy to complete the app-based questionnaire
Exclusion criteria
1. Being unable or unwilling to give informed consent
Outcome results
None listed