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CONNECT: A Support Program for Families Following a Developmental Assessment

CONNECT - A Brief, Solution-Focused Support Program for Families Following a Developmental Assessment: A Pilot and Feasibility Trial

Status
Not yet recruiting
Phases
Unknown
Study type
Interventional
Source
ANZCTR
Registry ID
ACTRN12624000980538
Enrollment
40
Registered
2024-08-12
Start date
2025-02-18
Completion date
2025-03-31
Last updated
2025-09-08

For informational purposes only — not medical advice. Sourced from public registries and may not reflect the latest updates. Terms

Conditions

None listed

Brief summary

Children with neurodevelopmental delays and/or differences can benefit significantly when they have access to the right supports and services. However, it can be hard for many families to access these supports for a variety of reasons. For example, some services are too expensive or too inconvenient to attend. CONNECT is a new individualised support program for families after their child has completed a developmental assessment and received a neurodevelopmental diagnosis (e.g., autism, ADHD, etc.). Clinician-researchers developed CONNECT as a way to help families connect with the right supports and services for their child. The aim of our research project is to evaluate whether CONNECT helps families access the supports that they need more quickly and easily than their current care pathways.

Interventions

CONNECT follows a Solution-Focused Brief Therapy (SFBT) framework. SFBT is short-term and evidence-based. It focusses on the solutions to the problem(s) experienced by the families, rather than the problem(s) themselves, by empowering and encouraging caregivers to achieve their goals. Participants will first have a baseline session with the study psychologists to discuss the report and recommendations received after their child's developmental assessment. Participants will then receive up to

CONNECT follows a Solution-Focused Brief Therapy (SFBT) framework. SFBT is short-term and evidence-based. It focusses on the solutions to the problem(s) experienced by the families, rather than the problem(s) themselves, by empowering and encouraging caregivers to achieve their goals. Participants will first have a baseline session with the study psychologists to discuss the report and recommendations received after their child's developmental assessment. Participants will then receive up to 4 x 45-60 minute, one-on-one sessions with one of the study psychologists. The sessions will be organised 1-3 weeks apart over a 4 month period as appropriate for the participants. As part of these sessions, the participants and psychologists will identify up to three goals that are related to caregiver and/or family functioning following their child's recent neurodevelopmental diagnosis. Then, the psychologist will provide participants with support within a SFBT framework that is tailored to the specific goals that they have identified. CONNECT is not a manualised intervention; instead, it is client-led. The techniques used within this framework may draw from other contemporary therapeutic modalities, such as Motivational Interviewing and Acceptance and Commitment Therapy. These sessions may be held in-person at the university clinics, over the phone, or via teleconferencing depending on the participants' preferences. These sessions will be largely talk-therapy based with additional handouts and homework tasks as appropriate to the participant's circumstances. All sessions will be audio recorded to allow for an evaluation of the CONNECT psychologist's fidelity and adherence to the SFBT framework. Only a randomly selected subset of the audio recordings will be used for the fidelity evaluation. This will be completed by independent research team members through the development of a shared coding protocol, based on a checklist of SFBT principles.

Sponsors

Professor Katrina Williams - Department of Paediatrics, Monash University
Lead SponsorIndividual

Study design

Allocation
Non-randomised trial
Intervention model
Single group
Primary purpose
Educational / counselling / training
Masking
Open (masking not used)

Eligibility

Sex/Gender
All
Age
18 Years to No maximum
Healthy volunteers
No

Inclusion criteria

Participants will include caregivers (i.e., anyone who has primary parenting responsibilities, such as birth parents, grandparents, uncles, aunties, foster parents, adoptive parents, etc.) of a child under 18 years of age who has received a neurodevelopmental diagnosis in the last 12 months. Additional inclusion criteria are: (1) Participants must have sufficient levels of English to complete the questionnaires and intervention sessions, OR, be able to nominate someone who can attend with them who has sufficient levels of English (2) The young person is not already engaged in intervention services for this new neurodevelopmental diagnosis. Engagement with existing intervention services for other diagnoses/needs is acceptable.

Exclusion criteria

Not applicable.

Outcome results

None listed

Source: ANZCTR · Data processed: Feb 4, 2026