None listed
Conditions
Brief summary
ENVISAGE-Families ( ENabling VISions And Growing Expectations) comprises five weekly online workshops for caregivers of children with a neurodevelopmental disability. Workshops provide caregivers with early exposure to current thinking and best practices around childhood disability and encourage information-sharing and connections among families and service providers. Our aim is to compare the effects of ENVISAGE-Families on family empowerment compared to ‘service as usual’ experienced by a waitlist control group at 6 weeks and 18 weeks post randomisation. Our secondary objectives are to: (i) examine the effects of ENVISAGE-Families on caregivers’ self-reported measures of parenting confidence, family functioning, caregiver health, caregiver wellbeing, psychological functioning, and child’s quality of life at 6 weeks and 18 weeks post randomisation; and (ii) determine if primary and secondary effects of ENVISAGE-Families are maintained at 17-18 weeks post-randomisation. Qualitatively, we seek to understand the impact of ENVISAGE-Families on: (i) how participants describe their child and family; and (ii) how this program might be relevant to them and impact their experiences of parenting a child with a disability.
Interventions
ENVISAGE-Families comprises five weekly online workshops for caregivers of children with a disability. ENVISAGE (representing ENabling VISions And Growing Expectations) workshops provide caregivers with early exposure to current thinking and best practices around childhood disability and encourage information-sharing and connections among families and service providers.
ENVISAGE-Families comprises 5 weekly online workshops (90 minutes per week of facilitated group-based discussions) with self-d
ENVISAGE-Families comprises five weekly online workshops for caregivers of children with a disability. ENVISAGE (representing ENabling VISions And Growing Expectations) workshops provide caregivers with early exposure to current thinking and best practices around childhood disability and encourage information-sharing and connections among families and service providers. ENVISAGE-Families comprises 5 weekly online workshops (90 minutes per week of facilitated group-based discussions) with self-directed preparatory activities (1-hour per week) on each workshop topic (12.5 hours total). The workshops topics include 1) Health and wellbeing in early child development, 2) Child and family development, 3) Parenting is a dance led by the children, 4) Looking after myself, and 5) Communicating, collaborating and connecting. Pre-reading includes reading materials, videos and activities related to the topics. Workshops are facilitated by two facilitators including a service provider and parent-peer who have been trained to deliver the program. The maximum group size for the workshops is 10 caregivers. Adherence is monitored by workshop attendance and access to the pre-reading materials.
Sponsors
Australian Catholic University
Study design
Allocation
Randomised controlled trial
Intervention model
Parallel
Primary purpose
Educational / counselling / training
Masking
Open (masking not used)
Eligibility
Sex/Gender
All
Age
18 Years to No maximum
Healthy volunteers
No
Inclusion criteria
To be eligible for inclusion in the RCT, participants must: • be caregivers (mothers, fathers, or others with significant caregiving and parenting responsibilities) raising children aged 0 to 8 years of age with an identified neurodevelopmental disability; • live in Australia; • be intending to participate in ENVISAGE-Families online • either have access to the internet or be willing to use study-provided internet access for the duration of the trial; • have sufficient English language proficiency to engage with materials (reading, writing, speaking), as determined in discussion about this criterion with potential participants; and • be available to take part in the 5-week ENVISAGE-Families program within the next 6 months after enrolment (to accommodate allocation to either immediate intervention or waitlist control group)
Exclusion criteria
Caregivers will not be eligible to participate in the RCT if: • they were involved in ENVISAGE-Families workshop development or participated in the pilot study (ACTRN12619001389190); • their child has not been formally identified with an neurodevelopmental disability; • their child is aged 9 years or older, as the content of ENVISAGE-Families currently addresses the needs of families of children with neurodevelopmental disability 0-8 years; or • They are unable or unwilling to take part in the online-delivery version of ENVISAGE-Families.
Outcome results
None listed