None listed
Conditions
Brief summary
Traumatic brain injury (TBI) is a complex chronic disease process with survivors facing unique and ongoing challenges over different recovery stages. Post-injury psychosocial and emotional adjustment problems are common and can reduce quality of life, functional recovery, and increase healthcare costs. The myTBI study aims to develop an online psychoeducation platform to improve psychosocial adjustment to TBI and enable continuing psychosocial support for individuals across acute, post-acute, and chronic phases of recovery. We hypothesise that psychoeducation will improve psychosocial adjustment after TBI and will have a significant impact on overall functional recovery and quality of life after TBI and reduce length of stay. Online education represents a cost-effective and scalable solution that can be directly and immediately implemented within existing health services without requiring highly specialised clinicians, and may be particularly effective for engaging the predominantly younger male TBI population.
Interventions
Intervention name: Online psychoeducation platform (myTBI) Intervention description: The myTBI psychoeducation platform will consist of approximately 6 (range: 4-8) brief structured modules addressing common psychosocial challenges experienced after TBI across different injury stages (acute, post-acute, chronic). Examples of psychosocial challenges that may be covered in the psychoeducation modules include understanding the diagnosis, understanding functional limitations, acceptance and coping with challenges, social connection, expectations and setting goals, and the recovery journey. An Expert Group will determine the number and type of modules to be included in the final myTBI platform using the Delphi Expert Consensus method. The Expert Group will consist of a balanced mix of approximately 10-20 clinicians, academics, and people with lived experience with TBI from Western Australia. Expert Group members will participate in multiple rounds of online surveys in which members will be asked to anonymously rank each psychosocial challenge in order of importance until consensus on the modules to include has been achieved. Modules will be purpose-developed and include educational information, and links to relevant strategies and exercises, and other useful resources. Who will deliver the intervention: Self-guided via online platform. Depending on level of cognitive functioning, participants will be able to work through the modules on their own, or to be guided through the modules by a rehabilitation clinician or support worker. Mode of delivery: Online website. Duration: 1 x 30 minute sessions, once a week for 6 weeks. Location: Post-acute community-based rehabilitation centre or at the participant's home.
Sponsors
Study design
Eligibility
Inclusion criteria
1. Adults aged 18 years and above, AND 2. Diagnosis of TBI according to Australian Rehabilitation Outcomes Centre (AROC) impairment codes: 2.21 Traumatic brain dysfunction, open injury and 2.22 Traumatic brain dysfunction, closed injury, AND 3. Currently undergoing post-acute rehabilitation at Brightwater Care Group
Exclusion criteria
1. Acutely ill and/or not medically stable as determined by the treating rehabilitation team, and/or; 2. In a minimally conscious state or have a prolonged disorder of consciousness (PDOC), as determined by a UK FIM+FAM score =35