None listed
Conditions
Brief summary
The primary purpose of this study is to find out how much difficulty people living with HIV (PLHIV) who live in a regional area have with everyday tasks, hobbies, sports, jobs, memory, emotion, or participating in social events. These difficulties are known as ‘Disability’ and ‘Frailty’, and we will measure them using three questionnaires. Also, because one of the disability questionnaires is relatively new, we want to compare it with the established disability questionnaire we are using, to test how suitable it is to use for PLHIV in regional Australia. The study will recruit 54 volunteers (over 18 years) living with HIV. Disability due to HIV leads to a reduced quality of life, so knowing what difficulties exist will tell us what changes are needed in health and community services to improve their quality of life. Without better understanding of disability and frailty, best services and funding to improve health, function, inclusion in society, and quality of life cannot be provided. This cross-sectional study with a nested reliability and validity study will use quantitative methods of 3 self reported written questionnaires measuring disability and frailty in PLHIV. Recruitment will be conducted at the Sexual Health Service study site. Initially, participants will be recruited through leaflets and posters advertising the study available on notice boards and in reception areas at the study site.
Interventions
The primary purpose of this study is to find out how much difficulty people living with HIV (PLHIV) who live in a regional area of Australia, have with everyday tasks, hobbies, sports, jobs, memory, emotion, or participating in social events. These difficulties are known as ‘Disability’ and ‘Frailty’, and we will measure them using three questionnaires. Also, because one of the disability questionnaires is relatively new, we want to compare it with the established disability questionnaire we are
The primary purpose of this study is to find out how much difficulty people living with HIV (PLHIV) who live in a regional area of Australia, have with everyday tasks, hobbies, sports, jobs, memory, emotion, or participating in social events. These difficulties are known as ‘Disability’ and ‘Frailty’, and we will measure them using three questionnaires. Also, because one of the disability questionnaires is relatively new, we want to compare it with the established disability questionnaire we are using, to test how suitable it is to use for PLHIV in regional Australia. The study will recruit 54 volunteers who are over 18 years old, living with HIV, and attend a Sexual Health Service. Knowing what difficulties PLHIV have will tell us what changes are needed in health and community services to improve their quality of life. This is important, as disability due to HIV leads to a reduced quality of life. So, without a better understanding of disability and frailty in PLHIV, the best services and funding to improve health, function, inclusion in society, and quality of life for this group of people. This study is clinical health research. This is a cross-sectional study with a nested reliability and validity study. It uses quantitative methods, using self-reported written questionnaires to measure disability and frailty in community-dwelling people living with HIV. Participants will complete the T0 data collection at a face to face 'usual care' sexual health service appointment. T1 data which is completion of one questionnaire, will be conducted at a self selected location (likely to be at their home) prior to mailing back to the chief investigator. Phase 1: Is a single centre cross-sectional study using self-reported questionnaires to measure disability using the World Health Organisation Disability Assessment Schedule (WHODAS 2.0) and frailty using the Frailty Scale with a single time point data collection per participant (T0). The Questionnaires will take approximately 35 minutes to complete all three. Phase 2: Comprises a nested construct validity study evaluating the HDQ compared to the WHODAS 2.0 (comparative reference standard) and Frailty Scale, and a repeated measures reliability study of the HDQ when delivered at two time points seven days apart (T0 and T1). Both Phase 1 and Phase 2 will consist of the same study population/participants.
Sponsors
James Cook University
Eligibility
Sex/Gender
All
Age
18 Years to No maximum
Healthy volunteers
No
Inclusion criteria
- Community dwelling adults (18yrs or over) -A diagnosis of HIV according to a confirmed Polymerase Chain Reaction (PCR) and Western Blot test. -Reside within the Townsville Hospital and Health Service area (https://www.health.qld.gov.au/maps) but includes individuals who reside in the communities and surrounding areas of Ayr, Bowen, Chartered Towers, Home Hill, Ingham, and Townsville. -Attend the TSHS for HIV care -Willing and able to understand and complete the WHODAS 2.0, Frailty scale and HDQ during their TSHS appointment -Willing and able to complete a second HDQ at home seven (7) days later and return this to the CI in the addressed and postage paid enveloped provided.
Exclusion criteria
Inability or unwillingness to provide written consent
Outcome results
None listed