Real-time patient-reported outcomes measures (PROMs) and patient-reported experience measures (PREMS) in oncology: exploring inclusivity and toward a new standard of care.

Participants will complete short PROMs and PREMs questionnaires on an electronic device up to 2 days prior to routine clinical consultations in selected outpatient oncology clinics, either in their own home or in the clinic waiting room. These questionnaires will ask about common cancer-related symptoms, quality of life, and supportive care needs. Treating clinicians will review questionnaire responses as part of their patient assessment and may use them to guide clinical care. Participants will be sent a link to an online questionnaire 2 days prior to their scheduled appointment and can complete the questionnaire on a personal electronic device. Participants who do not have access to a suitable device and attending in person may complete the questionnaire on a provided iPad in the clinic waiting room. In each case, a research officer will be available to assist participants with questionnaire completion if needed. The questionnaires will be available in English and also translated into 10 commonly spoken languages. They will take approximately 10-15 minutes to complete and will be administered prior to each scheduled clinic appointment. The frequency of questionnaire administration will be determined by the patient's routine clinical review schedule, which will vary between participants. There will be no additional visits to the clinics over and above usual care for this study. The research officer will audit consultation time pre- and post-intervention to assess the impact of routine PROMS and PREMS on clinic flow. All patients attending the clinic will be offered the intervention, and a log kept of those who decline to participate including the reasons given (if any).