None listed
Conditions
Brief summary
To capitalise on young children's high neuroplasticity and optimise outcomes for autistic children and their families, it is paramount that autistic children are identified, formally diagnosed, and access support services as early as possible. While the majority of supports focus on autistic children, it is important to also recognise the impact of autism on parents and the wider family system (e.g., higher stress levels). As such, there is a pressing need to provide appropriate parallel support for caregivers of autistic children. The prevalence of autism in children in Aotearoa New Zealand has risen from 1.4% in 2014 to 2.5% in 2021. This increase has led to higher demands on public health systems and resulted in longer wait times for accessing diagnostic and support services, delaying access to important early support. Autism New Zealand is an organisation that develops and provides support programmes for autistic individuals, their families, and health and education professionals. Their new Let’s Play programme is a child-focused, parent-mediated, community-based Naturalistic Developmental Behavioural Intervention (NDBI). NDBIs integrate behavioural and developmental theories, teaching children skills in developmentally-appropriate, naturalistic settings (e.g., play and everyday routines). The Let's Play programme stresses the positive impact that parents can have on their child’s development and teaches them play techniques they can use in their everyday routines. The primary objectives of the proposed research are to evaluate the effects of the Let’s Play programme on young autistic children’s engagement in parent-child interactions and parental stress. The secondary parent objectives are to evaluate the effects of programme participation on parental mental health and perceived parenting self-efficacy. Secondary child objectives are to evaluate the effects of parent participation in the programme on children’s social responsiveness, quality of life, behaviour, and communication. We also aim to evaluate how socially acceptable, culturally responsive and feasible parents perceive the programme to be, as well as parents’ adherence to implementing the programme techniques with their autistic child. We hypothesise that parent participation in the Let’s Play programme will result in (1) an increase in child’s engagement during parent-child interactions (e.g., more coordinated joint attention), (2) a decrease in parents’ stress, (3) improvements in parents’ mental health (i.e., decreased stress, depression and anxiety) and parenting self-efficacy, (4) improvements in children’s social responsiveness, quality of life, behavioural difficulties, and communication, (5) that parents will rate the programme as socially acceptable, culturally responsive, and feasible to participate in, (6) parents will demonstrate high adherence to implementing the programme, and (7) any benefits will be maintained over time.
Interventions
The Let's Play programme is designed to teach caregivers the value of play and give them a repertoire of techniques they can apply in everyday routines to positively impact their child’s development. The Let's Play techniques are developed to help build children’s communication, social reciprocity, shared attention, imitation, emotion regulation, planning, and problem solving skills during caregiver-child interactions. The Let’s Play programme focuses on three target areas: (1) caregivers’ play skills, (2) caregivers’ communication strategies, and (3) the well-being of the family. The programme draws on the Developmental Individual-Differences Relationship Model (DIR: Greenspan, 2000; Greenspan & Weider, 1999) and the Routines-Based Intervention (RBI; McWilliam, 2010; McWilliam et al., 2020), as well as Joint Action Routines (Ratner & Bruner, 1978), Vygotsky’s (1978) Zone of Proximal Development, guided participation (Rogoff, 2003), Rush and Shelden’s (2020) adult learning and coaching models, and the Maori practice of tuakana-teina (i.e., coaching of novice peers by experienced peers). Let’s Play will be delivered by Autism New Zealand staff who designed and developed the programme, using a coaching handbook they also created. Facilitator 1 is a registered teacher in New Zealand and the United Kingdom (Bachelor of Education with Honours) and co-authored the programme. They specialise in autism and are a National Educator at Autism New Zealand. Facilitator 2 has a Bachelor of Teaching and postgraduate diplomas in Early Childhood Education and Specialist Teaching. They are part of the early intervention team at Autism New Zealand. Facilitator 3 is the parent of an autistic child. They have a Bachelor of Media Arts and experience in the publishing industry. All three have current and clean New Zealand Police vetting checks. Each programme will include a cohort of up to 10 families. One family member will consistently attend each workshop, though additional extended family members (e.g., grandparent, family friend, etc.) are also able to attend. The programme will be delivered over a period of 9 weeks and will include three 3-hour group workshop sessions (Weeks 1, 3, and 5), five 1-hour in-home coaching visits (Weeks 2, 4, 6, 7, and 8), and an end-of-programme group celebration (Week 9). The group workshop sessions will be conducted at the Autism New Zealand Auckland offices face-to-face; however, its structure makes it possible to deliver online if necessary (e.g., nation-wide lockdown). During in-home coaching programme facilitators will meet with caregivers in the family home to provide coaching face-to-face in the child’s natural environment. This is a single-site study. The programme is delivered at Autism New Zealand (Auckland), and the research will be conducted at the University of Canterbury (Christchurch). Group coaching Each group coaching session focuses on a different component of play (i.e., Group Session 1: The Basics of Play; Group Session 2: Following Your Child’s Lead; Group Session 3: Using Everyday Routines). In each session, the facilitator works through a presentation that describes: the theory behind that week’s play and/or communication techniques, examples of how the techniques can be used, exemplar videos of parents using the techniques with their autistic children, and group discussions. Each family will also be given a printed handbook that includes notes on the content covered in the group workshop sessions and reflective tasks for them to complete (e.g., a brainstorming of when and how they could utilise the techniques from the workshops with their child). In-home visits Before families’ participation in the programme begins, the facilitator will visit the families’ homes and introduce themselves to the family, talk to them about the programme, and film a baseline parent-child play video. During the programme home visits, facilitators will provide one-on-one guidance to the families and help them implement the techniques described during group coaching sessions. This can include facilitators discussing the achievements and challenges the family had faced that week, helping them to reflect on these experiences and providing guidance on what to try next. The family can also demonstrate how they have been using the techniques from the Let’s Play programme in-person or in a recorded video to get feedback on what they are doing well and further strategies that they could try. Programme adherence and fidelity Four measures will be used to ascertain parents’ levels of adherence and implementation of the Let’s Play programme’s outside of the workshops and in-home visits. First, during the programme, parents will be asked to keep a weekly log of which Let’s Play techniques they use with their child and how long (mins) they use them for each day. In this same log, they will be asked to include all of the other professional support services they have accessed to support their child’s development (e.g., speech or occupational therapy services) including the length of appointments (mins). Second, a record of the number of workshop sessions parents attend will be used a measure of support dosage. Third, the 10-minute parent-child interaction videos will be used to assess parents’ implementation of the workshop modules when with their child. One 10-minute parent-child interaction video will be provided at baseline, immediately post-participation, and at 6-month follow-up. And fourth, an independent observer will use a checklist to assess whether the Let’s Play Programme was implemented with fidelity, for at least 15% of the workshop sessions and home visits. This will ensure that the programme is being administered as laid out in the coaching handbook and, hence, participants are receiving the same service.
Sponsors
Study design
Eligibility
Inclusion criteria
(1) have a child who is autistic or who has been identified as needing further diagnostic assessment. (2) their child is aged between 0 and 5 years 11 months. (3) the caregiver consents to randomisation (i.e., accept that they may be put on the waitlist). (4) the caregiver consents to participating in the evaluation of the Let’s Play programme (i.e., contributing data).
Exclusion criteria
(1) they are taking part in another parenting programme or receiving more than 15 hours of support per week through another service. (2) the caregiver does not speak sufficient English to be able to understand the consent processes and participate in the workshop sessions. (3) another child from their family is already participating in the trial.