None listed
Conditions
Brief summary
The aim of this study is to assess the feasibility and acceptability of the Living My Life Program for stroke survivors beyond 6 months post-stroke, living in rural and remote areas. The Living My Life Program is a digital health intervention, designed to support the participant to work towards their goals, using technology in a way that works for them, in their world. Case study design, informed by principles of co-design, will be used to trial the Program with stroke survivors living in rural and remote locations. Feasibility will be assessed according to pre-determined minimum success criteria. Acceptability will be explored through a brief survey and semi-structured interviews with stroke survivor participants. Learnings from the study will be used to refine the Living My Life Program for subsequent use.
Interventions
Stroke survivor participants will undertake the Living My Life Program, which is designed to support the participant to work towards their goals, using technology in a way that works for them, in their world. The participant works through 5-steps, guided by an allied health clinician, over a 3-month period. The Program begins with an initial interview by the therapist to determine what matters to the participant, their goals (e.g., going to church) and the strengths they can draw on, and the limitations they need to accommodate, in their world. In the following session (step 2), the therapist and participant co-design a home program in the form of an action plan. The action plan is goal-directed, incorporating activities related to goal practice, part-practice (e.g., walking on different surfaces), and addressing underlying impairments (e.g., strength). In step 3, the participant tries out their plan in their home. In step 4, the participant continues working through their plan independently, interspersed with coaching sessions with the therapist. Coaching sessions begin weekly, reducing to no less than monthly, as the participant gains confidence with their program. In the final step, the participant and therapist review the participant's progress and plan for continuing to work towards their goals. The participant records their activities throughout the Program in an electronic multimedia journal and monitors their progress using patient-reported outcomes. The therapist documents the sessions using purposefully designed templates. The participant is expected to attend 9 sessions, each lasting 30 - 60 minutes, over the 3 months. Digital health technologies are used by the participant to undertake their planned activities and communicate with the therapist. All sessions are conducted via online videoconferencing.
Sponsors
Study design
Eligibility
Inclusion criteria
(1) a diagnosis of stroke more than 6 months ago; (2) living at home; (3) with or without an NDIS package; (4) able to communicate (either verbally, written or with an augmented communication device), or have a significant other who is able to facilitate communication; (5) able to communicate over videoconference; (6) 18 years of age or over; and, (7) able to provide informed consent.
Exclusion criteria
Potential participants will be excluded if they are participating in a centre-based program at NWCR.