None listed
Conditions
Brief summary
Dementia carers may face more stressful events than general people during the COVID-19 pandemic. To maintain mental wellbeing, online delivery interventions hold the advantages of flexibility, cost-efficiency, and increased abilities. However, current iSupport online programmes trials reported a low adherence rate, and their efficacy is uncertain. To address these research gaps, we developed an iSupport virtual group intervention to improve or maintain the mental wellbeing of dementia carers based on a participant-centred approach. This pilot study will explore the feasibility of an iSupport virtual group intervention to improve or maintain the mental wellbeing of Chinese dementia carers. The findings from this intervention study will provide evidence for intervention refinements and will inform the development of a full-powered RCT.
Interventions
The Chinese version of the iSupport manual has been culturally adapted for Chinese dementia carers living in New Zealand, and it will be used in this study. This manual contains five themes spread across 23 sessions: (1) what is dementia? (one sesson), (2) being a carer (four sessons), (3) caring for me (three sessons), (4) providing everyday care (five sessons), and (5) dealing with challenging behaviours (10 sessons). For the iSupport virtual group intervention, only 11 sessions will be used. The development of the iSupport virtual group intervention was informed by the findings of a qualitative study interviewing Chinese dementia carers about their meaningful activities, digital ability, unmet needs, and usability of the Chinese version of the iSupport manual. These findings were used to tailor the iSupport virtual group intervention and to design the format of intervention delivery. The 11 lessons chosen by all the participants will be combined and prioritised by the research team. The 12 lessons of the iSupport virtual group intervention will be finalized from the findings of the interviews and 11 chosen lessons. This iSupport virtual group intervention will consist of a 1.5-hour session per week for 12 weeks. The intervention group will be divided into two groups with 5-7 people in each group. Two trained facilitators (an Age Concern Auckland staff and a volunteer) will be assigned to each group. Each session follows a similar format, consisting of a presentation about the main topic of the session, small exercises (e.g., mindful breathing), questions & answers, a summary of the lesson plus homework (e.g., preparing questions for the upcoming session), and evaluation. In addition, each session will involve a peer who was an experienced dementia carer or a health professional (such as a nursing practitioner or old age psychiatrist). After baseline assessment and randomisation, the participants in the intervention group will receive 12 sessions of the iSupport virtual group intervention. In addition, participants will receive all materials (The Chinese version of the iSupport manual and the iSupport virtual group intervention participant guide) for self-learning two weeks before starting the intervention. Zoom will be used to deliver the iSupport virtual group intervention. One day before the intervention, participants will receive a text reminder of the Zoom link and ID. Adherence to the intervention will be monitored using a spreadsheet before the start of each session.
Sponsors
Study design
Eligibility
Inclusion criteria
Inclusion criteria: • aged 18 years (self-identified) or older AND • members of Dementia Auckland, Age Concern Auckland, Dementia Canterbury, or Dementia Wellington AND • provide practical support with domestic and/or personal activities to the person with dementia for a minimum of 4 hours per week AND • be able to converse in Mandarin or Cantonese AND • internet users.
Exclusion criteria
Exclusion criteria: • carers with visual communication disorders or hearing disorders that may interfere with their ability to participate in the study AND/OR • unable to provide informed consent.