Multidisciplinary brain cancer rehabilitation, holistic assessment, and multimodal interventions to address survivorship needs: Brain Trial

15 eligible participants (18+ years) and their family/caregiver will be randomly allocated to the needs-based multimodal supportive care intervention. There are four main components to the intervention arm and each participant will receive the following: (1) Informational Materials Participants will be provided with an evidence-based information booklet, designed specifically for this study. The booklet will take approximately 10 minutes to read through and will include: how to self-care, managing side-effects, nutrition and exercise, relationships and sexual well-being, healthy lifestyle approaches and community-based supports. Participants can review and refer back to the materials at their own discretion. (2) Holistic Needs Assessment Participants will have an individualised, face-to-face session at each out-patient clinical review appointment (total duration of 6 months). The anticipated duration of each session is 30 minutes in length. The Holistic Needs Assessment (HNA) questionnaire will be completed by patients and family/caregiver before the consultation. The information gathered from the HNA will then directly inform an individually tailored self-management care plan. Concerns and problems, as well as realistic goals/expectations will be discussed and any necessary referrals to other multidisciplinary team members will be provided. (3) Self-Management Care Plans Self-management care plans will be developed with the participants at the end of the discussion of the HNA and shared with GPs. The self-management care plans may include self-care advice for specific symptom management, along with any lifestyle recommendations that may benefit the individual participant. Each care plan will be reviewed and adjusted (where necessary) by a member of the research team, at the 2, 4 and 6 month follow-up appointments. (4) Physical Exercise Programme Exercises will be prescribed based on the needs of each participant, identified by the exercise physiologist and the individual during the initial data collection appointment. Exercises (cardiovascular and/or body weight/resistance) will be tailored to individual needs depending on individual abilities and any existing co-morbidities. The individual exercise programme may be completed at home or in a clinical rehabilitation gym with an exercise physiologist supervisor. Any restrictions and limits on the exercise programme will be based on the needs of each participant, identified by the exercise physiologist and the individual during the initial data collection appointment. Session attendance checklists will be implemented to assess and monitor adherence to the interventions.