None listed
Conditions
Brief summary
Draw-Care aims to improve the lives of culturally and linguistically diverse (CALD) family carers and people living with dementia using culturally-adapted, multilingual animations, digital fact sheets, and a chat-bot, collectively titled “The Draw-Care Intervention”. The first objective addressed in Study 1 is to develop the digital resources in English and translated versions and undertake checking and user-testing within a series of six online workshops each tackling a different theme related to caring for an individual living with dementia. The workshops therefore use a co-design approach and include carers, clinicians, health and service providers and people living with dementia from CALD backgrounds. The digital resources -- within the scope of this trial are a culturally adapted complement to the iSupport Programme designed by the WHO for carers of people living with dementia.
Interventions
Draw-Care aims to improve the lives of family carers and people living with dementia from CALD communities using animations and digital technologies in different languages. Draw-Care is a single trial overall, encompassing three interconnected components. The objective Study 1 is to develop and refine the Draw-Care intervention using a co-design approach.
The Draw-Care intervention will comprise multilingual digital care resources -- animations, digital fact sheets and empathetic chat bot and w
Draw-Care aims to improve the lives of family carers and people living with dementia from CALD communities using animations and digital technologies in different languages. Draw-Care is a single trial overall, encompassing three interconnected components. The objective Study 1 is to develop and refine the Draw-Care intervention using a co-design approach. The Draw-Care intervention will comprise multilingual digital care resources -- animations, digital fact sheets and empathetic chat bot and will be developed based on the WHO's iSupport Lite program targeted to family, informal carers of people living with dementia. iSupport Lite "consists of a set of practical support messages for caregivers..." and has been extracted from iSupport, a more detailed version of the WHO's knowledge and skills online, virtual training program. (https://www.who.int/news/item/06-07-2020-who-launches-isupport-lite). The first objective is to develop and culturally adapt the 'Draw-Care intervention' collaboratively with CALD communities including family carers, people living with dementia, clinicians and service-providers as well as study partners (WHO, Dementia Australia, Federation of Ethnic Communities Council of Australia) using a co-design approach in nine CALD languages--Arabic, Cantonese, Greek, Hindi, Italian, Mandarin, Spanish, Tamil, Vietnamese, plus English. The co-production process includes four steps. - Step 1: Co-design workshops. A series of six online workshops (1.5 hours duration each) over a three week period. Workshop participants will include a heterogenous group including family carers of people living with dementia from a CALD background, clinicians and service providers. The total number of participants attending over the three week period will be between 42 to 60 in total. Therefore, each individual workshop will comprise 8-10 participants. Each workshop will focus on one key message based on the iSupport Lite Fact Sheets -- 1) Reach Out for Support 2) Taking Care of Yourself 3) Continuity of Care 4) Respond to Change 5) Be Flexible 6) Communicate Effectively. Participants will be provided with a proposed script and animation storyboard and asked to provide their feedback with the aim of refining the Draw-Care Intervention. To reduce study burden, participants can select the number of workshops they can attend (minimum is one) and are not expected to attend all six. The anticipated heterogeneity of workshop attendees invited to participate from a range of networks and organisations will support a diverse breadth of feedback by which researchers can refine the intervention in Step 3 below. - Step 2: Interviews. Six to 12 qualitative interviews will be undertaken with people living with dementia. Interviews will be no longer than 30 minutes with a family carer present using a video-conferencing platform consistent with HREC approval. - Step 3: Creating the Draw-Care intervention -- including 6 short animated films, 6 digital fact sheets and a multilingual chat-bot in English and nine CALD languages. - Step 4: User-testing: The digital resources will be member-checked with workshop and interview participants and user-tested by CALD carers (n ranging between 27-45). User-testing will be conducted online. Participants will be invited to complete demographics and eHEALTH questionnaires first, then they will complete different tasks on the Draw-Care site. Each testing session will be done on one language of 2-3 people in 20-30 minutes. Once developed and evaluated, the resources comprising the Draw-Care intervention will be collated, further tested and evaluated for clinical and cost-effectiveness in the next component of the Draw-Care trial using a Randomised Controlled Trial (RCT) design (detailed in a separate application).
Sponsors
National Ageing Research Institute Inc.
Study design
Allocation
Non-randomised trial
Intervention model
Single group
Primary purpose
Treatment
Masking
Open (masking not used)
Eligibility
Sex/Gender
All
Age
18 Years to No maximum
Healthy volunteers
Yes
Inclusion criteria
Step 1: Co-design workshop participant inclusion criteria. Eligible individuals must meet the following: • Be either CALD carers caring for a person with dementia or a clinician/service provider working with CALD carers; • Be from a non-English speaking background and speak one of the following languages at home: Arabic, Cantonese, Greek, Hindi, Italian, Mandarin, Spanish, Tamil, and Vietnamese; • Also speak English; • Be able to provide consent and participate in workshops; and • Have access to an internet connection and device such as PC, laptop or tablet/smartphone. Step 2: Interview: To participate in the qualitative interviews, participants must: • Have been diagnosed with any type of dementia; • Be from a non-English speaking background and speak one of the following languages at home: Arabic, Cantonese, Greek, Hindi, Italian, Mandarin, Spanish, Tamil, and Vietnamese; • Also speak English; • Be able to provide consent and participate in an interview; and • If participating in online interview, the participant will need to have access to an internet connection and an appropriate device e.g. laptop, PC, tablet or smartphone. Step 4: User-testing: To participate in the user testing phase, participants must: • Be CALD informal / family carers of people living with dementia; • Be from a non-English speaking background and speak one of the following languages at home: Arabic, Cantonese, Greek, Hindi, Italian, Mandarin, Spanish, Tamil, and Vietnamese; • Also speak English; • Be able to provide consent and participate in user testing; and • Have access to an internet connection and an appropriate device e.g. laptop, PC, tablet or smartphone.
Exclusion criteria
Individuals who meet the following exclusion criteria are not eligible to participate. Step 1: Co-design workshops: • Carers not from a CALD background and clinician/service providers who do not work with CALD carers. • Carers who don't speak one of the nine languages at home under investigation in this trial. • Are unable to provide consent and participate in one or more of the co-design workshops, • Do not have access to an internet connection and device such as PC, laptop or tablet/smartphone. Step 2: Interview: • Have not been formally i.e. medically diagnosed with any type of dementia; • Are from an English speaking background; • Not be able to provide consent and participate in an interview; and • Have no access to an internet connection and an appropriate device e.g. laptop, PC, tablet or smartphone to participate in an online interview. Step 4: User-testing: • Are not from a CALD background. • Are from an English speaking background; • Unable to provide consent and participate in user testing; and • Have no access to an internet connection and an appropriate device e.g. laptop, PC, tablet or smartphone.
Outcome results
None listed