None listed
Conditions
Brief summary
MAPS is an online program which combines music/song writing and psychological therapies with a closed social networking group, for people living with younger-onset dementia (PLWYOD) and their spousal care-partners. The goals of the program are to improve well-being, social connections and coping, with a secondary goal of investigating whether non-cognitive symptoms related to dementia, called neuropsychiatric symptoms (NPS) might improve as part of the program.
Interventions
MAPS intervention: 8 x group online sessions of 90 minutes (with a break), co-facilitated by a music therapist and psychologist, supplemented by a closed Facebook group (social media) for care-partners and people living with younger-onset dementia. Dyads (i.e care-partners and people with younger-onset dementia) will attend Session 1 and 8 together for joint-sessions Sessions 2 - 7: Care-partners and people with younger-onset dementia will attend in separate group sessions. These sessions will occur weekly. The major themes that will be covered over the sessions include: the changes that occur with being a care-partner or being diagnosed with dementia; focusing on the positives and staying well; promoting normalcy; collaborative and open communication; social support; and lifestyle changes and self-care. There will be optional "homework". This is anticipated to take about 30 minutes of sharing content to the closed Facebook group. This might include sharing songs or resources. The closed Facebook group will be moderated/monitored by the research team. The other "homework" will involve practicing the relaxation strategies which will be discussed during the online group sessions - this might take 5-10 minutes at night. Participants will be provided with workbooks which will be referred to and used during the online sessions and will be given these prior to the beginning of the intervention. The intervention will occur online, via the videoconferencing platform Zoom - the participants will likely be in their own homes, but can also be located in another venue if they prefer as long as they can access the internet and Zoom. The facilitators (music therapist and psychologist - qualified with a higher degree, at least 24 months research/clinical experience working with care-partners and people with dementia) will have a manual to work with. The facilitators will have fortnightly supervision with their respective senior researchers. Fidelity assessments - A standard fidelity checklist will be developed and session 2 or 3 will be recorded (cameras off/faces blurred) so that other members of the research team can rate fidelity. Allocation of participants to MAPS intervention vs waitlist control - Dyads who pass screening will be randomly generated a number 0 or 1 and if they receive a "1", they will be allocated to the intervention first.
Sponsors
Study design
Eligibility
Inclusion criteria
PERSON WITH YOUNGER-ONSET DEMENTIA - all genders included. Living at home. Symptom onset less than 65 years old (i.e can be older than 65 years old upon entry into the study). Mini mental state examination score between 22-28 years old. Sufficient english language, hearing and vision sufficient to tolerate 2 x 45 minute sessions. Access to the internet and labtop/tablet device. CARE-PARTNERS - spouses and living with the people with younger-onset dementia. Sufficient english language, hearing and vision sufficient to tolerate 2 x 45 minute sessions. Access to the internet and laptop/tablet device
Exclusion criteria
Dementia onset more than 65 years old. Not living at home in the community. Severe dementia as measured by a mini mental state examination score < 22.