None listed
Conditions
Brief summary
This research aimed to establish the evidence of psychosocial benefits of digital technology-based reminiscence work among older adults with dementia living in the community. The study hypothesis was the involvement of person with dementia in developing and having personalized digital memory album would lead to significant improvement on their quality of life, mood and cognition. The findings indicated that involvement in development of personalized digital memory album and having Digital Memory Album (DMA) have resulted in significant improvement in quality of life and cognition among person with dementia. Both, people with dementia and carer has given positive feedback on having DMA.
Interventions
BRIEF NAME: Digital Memory Album (DMA) Project
The feasibility of applying information and communication technology (ICT) to facilitate reminiscence work for people with dementia (PWD) and its potential to induce psychosocial benefits is well documented. Multimedia appears to be the earliest form of technology used to support reminiscence work. Tangible prompts like photographs, familiar items from the past or music which serve as stimuli for remote memories during reminiscence process are expor
BRIEF NAME: Digital Memory Album (DMA) Project The feasibility of applying information and communication technology (ICT) to facilitate reminiscence work for people with dementia (PWD) and its potential to induce psychosocial benefits is well documented. Multimedia appears to be the earliest form of technology used to support reminiscence work. Tangible prompts like photographs, familiar items from the past or music which serve as stimuli for remote memories during reminiscence process are exported into the multimedia system and further enriched with visual and auditory enhancement. This multimedia can be displayed to a person with dementia using DMA as a platform. WHY: The effect of traditional reminiscence work or therapy either in a group setting or individual setting never lasted more than 5 weeks. This is due to the lack of a tangible platform to display the reminiscence package such life story book so on. Previous research has indicated a person with dementia prefers digital life story book or paper based life story book. This is mainly because due to the incorporation of multimedia effects such as favourite music, songs, video clips, the narration of life story and many other digital effects only possible via ICT based reminiscence work. However, research still lacking in establishing a feasible platform to display digital life story book and its effects. Therefore current research aims to examine the effects of having DMA among older adults with Dementia. WHAT: This is an intervention which mainly focuses on the effect of developing digital memory album (DMA) and having DMA on psychological well being among older adults with dementia living in the community. Group 1: Intervention Group People in the intervention group received 8 individual sessions of life review process weekly leading to the construction of their own personalised digital life story (DLS) displayed in a Digital Life Story Album (DMA). The life review process was conducted according to the Life Review and Experiencing Form (LREF). The LREF used to develop participants' DLS contain multiple segment or themes in chronological order and usually conducted in 8 separate sessions; a. Introduction (opening session) b. Childhood c. Adolescence d. Family & Home e. Adulthood f. summary session, After 8 initial sessions, the personalised DLS developed through life review process is uploaded and displayed in a digital memory album (DMA) at participant's home for 6 weeks. This DMA contains participants life story in chronological order with their pictures, movie clips, background music, tangible items e.g. work id, certificates etc. Digital Memory Album (DMA) is a 15 inch screen digital photo frame with remote control, motion sensor, built in sound system, USB memory storage and two auto-play looped sections which separate photo from the video. Control Group (Active); Received usual care in the community. WHO PROVIDED: A post graduate with a qualification in Community Health Sciences and received 6 months of training at geriatrics health services. HOW: The intervention was executed in an individual face to face session. WHERE: In a selected participants' home around Kuala Lumpur and other areas in Klang Valley in Peninsular Malaysia. Participants were selected based on examination and diagnosis outcome from Memory Clinicals at Government hospitals. Each Memory Clinics has an expert in cognitive disorders such as a geriatrician or psychogeriatrician. WHEN AND HOW MUCH; This intervention was carried out for over a period of 3 months and 2 weeks for each participant. First 2 months (week 1 to week 8), life review process intervention phase and the next 6 weeks (week 9 to week 14) is a phase whereby participants viewed their own digital life story in a DMA. The intervention consisted of 8 weekly sessions of the individual life review process and another 6 weeks to watch DMA. Time: 60 to 90 minutes is the time duration of each session of the 8 weekly life review sessions Intervention adherence monitoring: using logbook and session attendance checklist. TAILORING: (i) The life review session has been adjusted according to participants' interest and availability of personal items e.g. photos, music and etc. If participants lacked in personalised items to suit the theme of the session, a generic item or pictures was used to facilitate the recalling process (ii) Interventionist acted a secretary or editor and participant as a director of their own life story movie. MODIFICATION: N/A
Sponsors
University Kebangsaan Malaysia
Study design
Allocation
Randomised controlled trial
Intervention model
Parallel
Primary purpose
Treatment
Masking
Blinded (masking used) (Outcomes Assessor)
Eligibility
Sex/Gender
All
Age
18 Years to No maximum
Healthy volunteers
No
Inclusion criteria
• Participants aged 60 years old and above, ambulatory and community dwelling with a diagnosis of dementia according to DSM-5 by a psychogeriatrician. • The rating of the Clinical Dementia Rating (Hughes et al., 1982) should be stage 1 (mild) or stage 2 (moderate). • Participants should have sufficient abilities to speak, write and read in Malay language. • Participants and relatives (caregivers) were willing to participate and consent for the study. • Participants must have a relative, close friend, or care staff member who is willing to participate in tasks which require an informant perspective and give necessary additional life history of participant.
Exclusion criteria
Participants were excluded from the study if they had a history of psychosis based on medical record, presence of psychiatric diagnosis (based on DSM-5) other than dementia (major neurocognitive disorders), severe physical condition or uncorrected sensory problem e.g. vision or hearing and severe dementia.
Outcome results
None listed