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EndoSMS: A text message supportive program for individuals with endometriosis

EndoSMS: Development and feasibility study of a text-based supportive intervention for individuals with endometriosis

Status
Completed
Phases
Unknown
Study type
Interventional
Source
ANZCTR
Registry ID
ACTRN12621001642875
Acronym
EndoSMS
Enrollment
279
Registered
2021-11-30
Start date
2021-11-18
Completion date
2021-12-08
Last updated
2023-01-09

For informational purposes only — not medical advice. Sourced from public registries and may not reflect the latest updates. Terms

Conditions

None listed

Brief summary

With 1 in 9 Australians of childbearing age living with endometriosis, this chronic condition is characterised by debilitating physical symptoms which negatively impact on their psychological wellbeing and quality of life. This pilot study will assess the feasibility of a co-designed supportive text message program (EndoSMS) to enhance the psychological wellbeing and quality of life of those with endometriosis. Co-designed text message interventions have been demonstrated to improve health-promoting behaviours and medication adherence in individuals with chronic conditions and are a cost-efficient means of providing health education and support. Text messaging is particularly suited for young to middle-aged people (the majority of those impacted by endometriosis) because mobile phone ownership is high, little effort is required to receive the intervention, and texts can be read/re-read at times that suit users. Informed by psychological and communication theory, this study aims to develop a co-designed bank of text messages focused on providing evidence-based information about endometriosis management, psychological support and tips for self-care and a healthy lifestyle. Following co-designed development of the text message bank, piloting of the EndoSMS intervention will be undertaken with a minimum sample of 120 individuals living with endometriosis.

Interventions

EndoSMS is a text messaged based intervention that provides supportive messages to individuals living with endometriosis. Messaging covers a range of domains including general endometriosis information, psychological support, self-care and general lifestyle tips. Participants will receive four semi-personalised text messages (e.g., to their preferred name) per week, free of charge, for a period of three months with messages selected from the EndoSMS message bank according to their user character

EndoSMS is a text messaged based intervention that provides supportive messages to individuals living with endometriosis. Messaging covers a range of domains including general endometriosis information, psychological support, self-care and general lifestyle tips. Participants will receive four semi-personalised text messages (e.g., to their preferred name) per week, free of charge, for a period of three months with messages selected from the EndoSMS message bank according to their user characteristics (e.g., smoker vs. non-smoker). Each message is very brief - a maximum of 50 characters and should take less than 1 minute to read.

Sponsors

Macquarie University
Lead SponsorIndividual

Study design

Allocation
Randomised controlled trial
Intervention model
Parallel
Primary purpose
Treatment
Masking
Open (masking not used)

Eligibility

Sex/Gender
All
Age
18 Years to No maximum
Healthy volunteers
No

Inclusion criteria

Participants are eligible to participate if they are: over 18 years of age; clinically diagnosed with endometriosis; proficient in English; have access to the internet and a mobile phone; resident in Australia

Exclusion criteria

-

Outcome results

None listed

Source: ANZCTR · Data processed: Feb 5, 2026