None listed
Conditions
Brief summary
The Early Onset Alzheimer disease (EOAD) is an autosomal dominant disease that is transmitted to the offspring with a chance of 50% in each pregnancy. The age of onset is around 35 years old and the duration of the disease before death is around 10 years. In the town of the Jalisco state: "Los Altos de Jalisco", a group of patients comprising around 40 families are identified with a unique mutation causing EOAD. The disease can be detected before it initiate with symptoms in the offspring of affected patients, however this detection is not performed routinely to date, therefore this study is addressed to identify the intention to perform the genetic pre-symptomatic test by clearing the doubts referring the diagnosis and increasing emotional and coping strategies that permit the offspring to diminish depression and stress levels and to take an informed decision about to take or not the genetic test.
Interventions
According to the interest in the population studied we decided to only perform one intervention session that will consist in 1 face-to-face session of 2 hours addressed to clear the doubts of the genetic counseling performed and to increase emotional intelligence and coping strategies.
The genetic counseling will be administered by a psychologist trained in the genetic disease.
The methods/strategies would be a general psycho-educational program where the description of emotional intelligence
According to the interest in the population studied we decided to only perform one intervention session that will consist in 1 face-to-face session of 2 hours addressed to clear the doubts of the genetic counseling performed and to increase emotional intelligence and coping strategies. The genetic counseling will be administered by a psychologist trained in the genetic disease. The methods/strategies would be a general psycho-educational program where the description of emotional intelligence will be given, specifying what are the positive and negative emotions, how to identify them, how to identify the causes of these emotions and how can we modify the negative emotions by identifying the cause and changing the psycho-emotional pattern that resulted in that emotion. For coping strategies to better manage the stress, will be addressed to identify the problems os stressors that can be modified, and those that can not be modified. For those that can be modified, the participants will be encouraged to adopt and active copping strategy, which is addressed to plan the steps to solve the problem. For those that can not be modified the adaptive coping strategy of acceptance will be encouraged.
Sponsors
Aniel Jessica Leticia Brambila Tapia
Study design
Allocation
Randomised controlled trial
Intervention model
Parallel
Primary purpose
Educational / counselling / training
Masking
Open (masking not used)
Eligibility
Sex/Gender
All
Age
18 Years to 35 Years
Healthy volunteers
No
Inclusion criteria
Children of patients diagnosed with Early Onset Alzheimer disease Be aware of the diagnosis of the affected parent Older than 18 years old Have no symptoms of the disease That accept to participate in the study
Exclusion criteria
Those participants that do not complete the intervention sessions Those participants that do not complete the basal and post-test measurements Those participants that initiate with symptoms of the disease Those participants that want to withdraw from the study
Outcome results
None listed