None listed
Conditions
Brief summary
In Australia, 2.8% of children are diagnosed on the autism spectrum. Autism Spectrum Disorder is a lifelong neurodevelopmental condition which impacts social communication and is often characterised by restricted / repetitive behaviours. Additionally, 88% of autistic people are also reported as having additional co-occurring disabilities. For up to 70% of children and adolescents on the autism spectrum this can include mental health conditions including anxiety and depression. In addition to the impact of Autism, the mental health conditions they suffer from are of at least the same severity as that of their disability. However, unlike Autism, mental health conditions are reversible and preventable. While approximately half of autistic adolescents also have an Intellectual Disability, there is very little research or evidence-based programs aimed at this vulnerable population that aim to promote mental health, emotional development and social skills. For autistic adolescents with co-occurring ID there is no targeted intervention supporting the development of emotion-based skills. Previous implementation research on the Westmead Feeling Program, developed and researched by psychologists at the Children’s Hospital at Westmead, has established the effectiveness of emotion-based learning for primary school-aged children on the autism spectrum, with and without an intellectual disability, and adolescents without an intellectual disability, both in school and clinical settings, in improving emotional competence and reducing symptoms of mental disorder. Recently the Westmead Feeling Program authors conducted a pilot study to investigate the feasibility and experience of an adolescent adaptation of the Westmead Feelings Program, called The Feelings Program Adolescent Version (TFP-A; HREC/17/SCHN/386). The small pilot study found that adolescent participants, their parents and teachers all found the program, when delivered by the researchers, to be feasible and enjoyable. These positive results provide support for further research to investigate the impact of the intervention. In this study we aim to further address the current research gap in intervention by implementing a larger trial of the adapted program for autistic adolescents with mild ID, to be delivered in an Aspect school-based setting, delivered by teachers and psychologists. This study aims to assess the feasibility and efficacy of TFP-A that will inform a large scale evaluation of the program. This study aim to exploring the impact of the intervention on emotional competence, problem behaviours, and mental health. TFP-A involves adolescent participants attending intervention sessions held across a school year and a 1 hour booster session six months later. Parents are also invited to attend group emotion coaching sessions and access online content . Questionnaires and assessments completed by adolescents, their parents and teachers will provide data on outcomes.
Interventions
The Feelings Program - Adolescent Version (TFP-A) was adapted from the Westmead Feelings Program (WFP) by the WFP author group for an adolescent target audience, with a diagnosis of autism spectrum disorder and co-occurring mild intellectual disability (ID). In this single arm, within-subjects intervention study, in 2022, TFP-A will be delivered to students enrolled in a secondary autism-specific school-based setting (selected Autism Spectrum Australia (Aspect) Secondary School Classes). Based on previous studies we have conducted in over 65 NSW schools and 8 Aspect Schools, TFP-A will be delivered in classroom groups as part of the normal PDHPE curriculum. A recent study of WFP in Aspect primary schools with children 7-12 years old indicated that it was feasible to conduct the program in the classroom setting and that it helped to fill a gap in the PDHPE curriculum. Furthermore, Aspect Schools also recognised a need for a similar program adapted for secondary school students. Aspect Schools will be asked to nominate school psychologists and teachers to assist in the implementation of TFP-A in their School secondary classes. Previous studies of WFP1 have found that teachers can facilitate the WFP. Aspect staff, including school psychologist, school coordinators and experienced educators will facilitate TFP-A. Teaching staff will also provide positive behaviour support and learning support in their role as co-facilitators. There may be between 3-10 students in each class. All members of the class will be invited to attend the TFP-A sessions. All sessions will be facilitated by a psychologist or experienced educator (with at least 5 years experience working with autistic adolescents with mild ID). The Aspect facilitators will be trained by authors of WFP to become facilitators of TFP-A. Facilitator training will include a total of 10 hours of training (via zoom) held over 3 days. Training will include 7 hours over 2 days in Term 4, 2021 and 3 hours on one day in Term 1, 2022. To pass the training, staff need to achieve 80% or above on an online quiz and demonstrate competence in delivering the program through a 10min video demonstration task. The manualised program provides step by step instructions on how to run the group and includes paper-based and computer-based visual supports and audio-video content. TFP-A consists of 18-20 sessions, each of 60 minute during, held fortnightly. It is expected that the program will start in Term 1, 2022 and will be completed in Term 4, 2022. The booster session will be held in Term 2, 2023. TFP-A is grouped into 3 modules covering 1) identifying and expressing emotions, 2) problem solving and perspective taking and 3) emotional regulation. A booster session will be held 6 months after the last clinical session and is a review and consolidation of the material already covered in the program. The booster session will be for 60 minutes. Co-facilitators will be asked to complete an implementation checklist of during the sessions as a measure of fidelity. In the group intervention sessions student participants will engage in a class lesson which includes watching videos, discussing the content of videos and completing worksheets based on their own examples. For example in lesson 1 students watch a video to learn about good and not-so-good feelings, they then have a class discussion on different good and not-so-good feelings, followed by completing a worksheet that consolidates their learning. They are then asked to complete a worksheet based on their own example. At the end of each lesson students are given takeaway tasks based on the same worksheet. It is expected that worksheet will require 15 minutes to complete, with the support of a parent / carer in the home environment. All worksheets will be reviewed by the facilitators and co-facilitators to ensure that students are completing the worksheets accurately, and that students understand the material being taught. There are consolidation sessions at the end of each module which can provide facilitators time to support additional learning. There are two versions of worksheets available for facilitators to use, a basic version and a more complex version. All students will be provided with both worksheets in the first module, however based on progress and accurate completion of the worksheet, students will be provided with the worksheet that best meets their learning needs in Module 2 and Module 3 (ie reduced cognitive content). TFP-A is held at school in class-time for students, however there is also separate online parent content. The online parent program will include videos, written resources and guidance to develop their skills as emotion coaches for their child. There will also be opportunities for parents to meet with other parents in an online session, facilitated by TFP-A facilitators. The aim of the parent sessions is also to build parent capacity and confidence in supporting their child's emotional needs in a home and community context. This will include using the strategies and language taught in TFP-A. Parents will be invited to attend a face to face session (or online session if required by general health recommendations during the global pandemic) before the commencement of the program (in Term 1, 2022). Parents will be provided training on the purpose of TFP-A and their role as an emotion coach. They will be introduced to the online training program and taught how to access the program and the elements covered over the year in TFP-A. Each fortnight over the course of TFP-A (Term 1, Term 2 and Term 3) parents will be asked to complete short online training modules, each one lasting for 10-30 minutes. There are 10 modules in total covering generalisation of skills in autism, emotion communication, recognising emotion body signs, recognising emotion-based behaviour, linking situations, thoughts and feelings, problem solving, perspective taking and a range of emotion regulation strategies. There will also be an additional 5 modules that focus on the role of the parent regarding parent attunement, modeling emotion regulation, mindfulness, parenting teenagers and trouble shooting. Each online training module will have a learning check with 2-3 questions to assess if a parent has grasped the concepts being taught. Parents will also be asked to attend a group training session at the start of each Term to provide them with additional support and opportunity to practice new skills with the facilitator. Face to face session will be for 1 hour duration. It is asked that parents complete all the online training sessions and attend the 3 face to face parent sessions. Attendance records will be kept of group sessions and progress of online material will be accessed through the learning management system (LMS).
Sponsors
Study design
Eligibility
Inclusion criteria
The selected Aspect School Secondary classes will be chosen based on the consent of the School Principal. School Principals will take into consideration the number of students that meet the inclusion criteria; Adolescents aged 11-16 years old with a mild Intellectual Disability (IQ between 50 and 75) who are enrolled to attend an Aspect School secondary class in 2022 (Year 7-11 in 2022). Students on the autism spectrum often have complex presentations, and it is likely that classes may include students with a variety of support needs, including emotional, intellectual and physical impairments. Students who attend but do not have a mild intellectual disability will be asked to consent to participating in the study, but will be reported on separately .
Exclusion criteria
All student in the class who have the consent of parents to participate in the study will be included. Parent who do not consent to being a part of the study will be excluded from the parent component of the program and no data will be collected on their child.