None listed
Conditions
Brief summary
Many people with dementia eventually move into residential care. Making this decision and coping with admission processes can be stressful and distressing. However, carers report that formal supports to help families cope during this time are lacking. This pilot randomised controlled trial aims to test whether it is feasible to provide a telehealth counselling support program and printed informational support following Aged Care Assessment Team approval for long-term care and whether different methods of information and support may help family members or friends of people with dementia cope with any issues surrounding the move into residential care. The Residential Care Transition Module (RCTM) consists of six telephone or video-link counselling sessions delivered to family carers over 12 weeks by a trained psychologist or counsellor. It includes education about dementia and residential care facilities, dementia-specific grief counselling, stress reduction techniques, and referral to support networks. The control group will receive a check-in call and a printed information pack about residential aged care, coping with placement, managing feelings, working in partnership with residential care staff, and details of support services by Dementia Australia. The pilot study will test whether delivery of the counselling and / or printed information is beneficial in reducing family carer stress, anxiety, depression, guilt, and grief, and improving social support during the course of placement. This may help carers to better cope and adjust once their relative has been admitted into residential care.
Interventions
The psychosocial intervention is the Residential Care Transition Module (RCTM). Those allocated to the intervention group will be invited to participate in six individualised telephone- or video-counselling sessions. These will be delivered by a trained Transition Counsellor (TC; registered counsellor or psychologist, masters level or above), using a detailed intervention protocol which includes the following components: 1) Processing the carer’s experience and helping to review and validate the decision to admit their relative into RAC. Assessment of individual needs and issues for future sessions. 2) Education about dementia and the RAC environment and procedures. 3) Discussion of communication skills to support effectively working with RAC staff to provide person-centred care. 4) The impact of loss and anticipatory grief associated with the admission process, separation from a family member, and the progression of dementia. 5) Transition into new caregiving roles. 6) Any remaining residual emotional and cognitive dissonance. The TC will provide problem-solving and coping strategies; psychological and emotional validation and support; and direction to community support and resources, as required. Each one-hour session will be tailored to the participant’s needs. To establish rapport and minimise withdrawal, the first three sessions will be scheduled weekly if possible (weeks 1, 2, 3) and every three weeks thereafter (weeks 6, 9, 12). Ad-hoc sessions will also be provided where necessary. If the carer’s relative with dementia dies during the intervention period, the TC will continue to offer the sessions to help facilitate the grief process. The intervention group will also receive printed information from Dementia Australia. The provision of intervention sessions will be documented by the TC (date of session, time started and finished, topics covered, outcomes to follow-up for next session, any changes made and reasons for doing so) to determine “dose” of the intervention and to help inform subsequent sessions. 20% of audio-recorded sessions will be selected (with consent) to check adherence to the protocol by the Trial Manager (treatment fidelity).
Sponsors
Study design
Eligibility
Inclusion criteria
Any family member (related biologically or by marriage or choice) who is the primary carer of a person with dementia who has received approval from an Aged Care Assessment Team (ACAT) for permanent Residential Aged Care; Is English-speaking with sufficient hearing ability to participate in counselling sessions; Is over 18 years of age.
Exclusion criteria
Family carers whose family member with dementia has not yet received approval from a ACAT for permanent residential care. Family carers who are not English speaking. Family carers who are unable to hear sufficiently to take part in counselling sessions. Family carers aged under 18 years.