None listed
Conditions
Brief summary
With a large proportion of people with mental ill-health not engaged with professional services, the role of providing care to these individuals often sits with relatives, friends and social networks. Researchers commonly referred to these individuals as ‘carers’. The most recent data estimates showed that the number of Australians who identified as informal carers of someone living with a mental health condition was between 225,421 and 1.5 million people (Diminic, Hielscher, Lee, Harris, Schess, Kealton & Whiteford, 2016). Based on these number estimates, carers make a significant contribution to the Australian economy in terms of lowering Government health expenditure. Therefore, keeping carers healthy not only makes humane sense but also good economic sense. While caring can be very rewarding, carers also experience higher mental ill-health, depression, and anxiety rates than non-carers (Foster 2011; Butterworth et al., 2010; Aggar, 2016). Other risk factors for carers include financial hardship, reduced education and employment opportunities and social isolation (Aggar 2016; Berecki-Gisolf, Lucke, Hockey & Dobson, 2008; Broady & Stone, 2015). Mental health focussed supports for carers to date typically target carers of people with conditions such as cancer, dementia, and diabetes. While some interventions have been developed for health carers specifically, they usually require the care recipient to have a formal diagnosis of a condition, such as bipolar, schizophrenia and depression. This is despite evidence of challenges associated with symptoms of depression or anxiety that do not meet the threshold for diagnosis. Recent studies highlight the benefits of online carer interventions and their capacity to improve self-efficacy, self-esteem, and feelings of depression (McKechnie, Barker and Stott, 2014). Results from these studies have also demonstrated the many advantages of online support compared to face-to-face interventions such as ease of accessibility, time convenience, physical convenience and a lack of stigma relating to professional help-seeking (White, 2001). However, a systematic review of the literature did not identify any evidence-based interventions for people supporting someone with symptoms of depression or anxiety. The following study explores the feasibility of a Randomised Controlled Trial (RCT) comparing online support for carers of people with depression/anxiety to a waitlist control. The study also explores participant acceptability of the Minds Together program. Feasibility was assessed using adherence and attrition rates. Acceptability was assessed using participant feedback through surveys and interviews. The study also explored the effects of the program on carer burden and coping self-efficacy.
Interventions
The program aims to support carers in responding to the person living with these symptoms and promoting their own health, well-being and coping. It includes four activity modules: The caring journey, Caring for yourself and others, What matters to you, how to talk about, and Helpful strategies for everyday life. The modules, which are evidence-informed, include targeted psychoeducation, communication strategies and tips for self-care and managing stress. The modules use a mixed-media format, including short videos, infographics, highlighting some of the key information and feature 'real life' examples from carers' lived experiences. The modules also include podcasts that feature information and tips from clinicians, academics and experts in mental health. In addition, activities aim to promote mental health for carers. For example, the timeline activity requires participants to reflect on their caring experience and document how this has changed over time. Participants are encouraged to plot times when they experienced high and low periods over the past few years. Following this activity, carers are presented with a graph of their journey. The visual representation of this experience aims to show carers that while there are difficult times, there are also good times. Similarly, the values activity requires participants to choose their top three values from a list. The list includes broad categories such as ‘the greater good', ‘health’ and ‘security’. As the module progresses, participants are asked to choose which area of life they would like to put this value into practice, e.g. relationships, health, work and play. The activity is intended to support participants to live by their values and give them purpose and direction in their lives. At the end of the activity modules, there are take-home messages and resources (e.g. downloadable PDFs) for carers to use at home and in their relationship with the care recipient. The program has been developed on a web-based platform that has been used in similar online support programs. The mode of delivery was a self-paced online course. The platform that hosts the program has been used for other online programs. Participants had access to the program for a total of eight weeks. In the first week of the study period, participants in the program group had access to the first module. In the second week, participants had access to the first and second modules, and so forth for the first four weeks of the study. For the remaining four weeks of the study, participants had access to all of the modules. Each module takes approximately one hour to complete. However, participants could continue to access the modules over the eight-week period to revisit activities or download resources once completed. Following this access period and completion of the post-survey, participants from the waitlist group were granted program access. The research team collected analytics data during the program access period, i.e. metadata detailing the time spent and pages clicked within a module.
Sponsors
Study design
Eligibility
Inclusion criteria
- Aged 16 years or older - Currently supporting someone who is experiencing, or has experienced, symptoms of depression or anxiety - Currently living in Australia
Exclusion criteria
-Not comfortable reading and writing in English -Not comfortable using web-based programs