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Self-care programme for informal carers of stroke survivors

Strengths-based resilience intervention for informal carers of stroke survivors - a feasibility randomized controlled trial

Status
Completed
Phases
Unknown
Study type
Interventional
Source
ANZCTR
Registry ID
ACTRN12621001060831
Enrollment
27
Registered
2021-08-11
Start date
2021-05-12
Completion date
2021-05-25
Last updated
2022-08-09

For informational purposes only — not medical advice. Sourced from public registries and may not reflect the latest updates. Terms

Conditions

None listed

Brief summary

Stroke is New Zealand’s leading cause of serious adult disability (Ministry of Health, 2018). Carers have an essential role in the recovery of stroke survivors from rehabilitation, to returning home and community reintegration. However, the physical, social, psychological, and financial impact arising from stroke are devastating and present important challenges for the family members who provide substantial amount of care to the stroke survivor. As a result, carers often experience stress, inability to cope with the changing demands of their life situation and an over whelming sense of burden. Interventions that enhance carers’ resilience and sense of well-being may be of great benefit to them. This project aims to test a psycho-social programme designed for carers to build resilience, defined as “the ability to cope with adversity”. The programme aims to develop coping and problem-solving skills and to cultivate positive communication and relationships. The primary aim of the study is to evaluate the feasibility, acceptability and practicalities of the intervention to improve resilience and psychological well-being of carers of stroke survivors in a randomized controlled trial design. The study seeks to answer whether a resilience programme for carers of stroke survivors is feasible to implement and is considered beneficial for carers?

Interventions

The intervention programme is known by the name of Strengths-Based Resilience.The Strengths-Based Resilience program is designed to help develop resilience, defined as the ability to cope with adversity. The program invites participants to reflect actively on their experiences that demonstrate various aspects of resilience. By reflecting back on these experiences, and engaging in other exercises, participants learn skills and strategies to build resilience. The programme comprises of 6 skills ba

The intervention programme is known by the name of Strengths-Based Resilience.The Strengths-Based Resilience program is designed to help develop resilience, defined as the ability to cope with adversity. The program invites participants to reflect actively on their experiences that demonstrate various aspects of resilience. By reflecting back on these experiences, and engaging in other exercises, participants learn skills and strategies to build resilience. The programme comprises of 6 skills based sessions focusing on topics like story of resilience, cognitive accuracy and flexibility, signature strengths, grudge and gratitude, savouring and empathy and positive relationships. The programme is being delivered by the PhD student who is an experienced psychologist with five years of clinical experience in delivering interventions. The programme is co-facilitated by the community stroke advisor stroke foundaton of New Zealand (Otago branch). Co-facilitation was considered for the sustainability and usefulness of the programme in future by the Stroke Foundation NZ. The programme will be delivered face to face in group format. Two groups will take place in Dunedin and one in Oamaru. Groups will comprise of maximum five people per group. The intervention will be delivered for six months from June to November 2021. 6 x 2 hour sessions once / month for 6 months. The intervention will take place at the Community House Dunedin and Oamaru - New Zealand. session attendance checklists will be used to monitor adherence to the intervention.

Sponsors

Ayesha Qureshi
Lead SponsorIndividual

Study design

Allocation
Randomised controlled trial
Intervention model
Parallel
Primary purpose
Educational / counselling / training
Masking
Blinded (masking used) (Outcomes Assessor)

Eligibility

Sex/Gender
All
Age
18 Years to 75 Years
Healthy volunteers
Yes

Inclusion criteria

Aged 18 years or over Informal or un-paid carer of a person with a confirmed diagnosis of stroke at least six months before the study Capacity to provide informed consent Willing to attend a once per month 6-month duration programme

Exclusion criteria

Formal or paid carers Carers of people other than stroke survivors

Outcome results

None listed

Source: ANZCTR · Data processed: Feb 4, 2026