None listed
Conditions
Brief summary
Brief Description The COVID-19 pandemic highlights the urgent supportive and palliative care (PC) needs and deficiencies in this unprecedented health crisis. In Victoria, the greatest impact has been felt in the vulnerable aged care sector. Access to specialist PC for symptom and end-of-life care has been inadequate. The research model proposed allows for multiple access points to PC services independent of illness trajectory, location or point of integration to other care providers, facilitated by telehealth to allow rapid and responsive delivery. It is well suited to address the urgent aged care COVID-19 PC needs.
Interventions
The RaPIC program is provided through the RAPID team, a multidisciplinary palliative care team that looks to provide gap-fill palliative care interventions upon discharge to a residential care facility. This includes medical, nursing and psychosocial care. Participants have access to RaPIC as it is a pre-existing service. The recruitment will be purposive sampling targeting residents and families who have received support through the service. Participants will take part in a semi-structured qualitative interview. Following participation in the interview encounter, participants will be offered and provided follow-up support for any unmet concerns or needs relating to their health care. Any information of concerns that arise during the period of follow-up care will not be part of data collection. From a qualitative perspective, the focus of the interviews will consider how awareness of the COVID-19 pandemic's impact on the aged care system influences participants perceptions of palliative and end-of-life care in aged care facilities. In the event, that there is further community transmission, the qualitative interview will consider the unique needs of COVID-19 positive residents and their families. The interviews will be completed by a research social worker, conducted face to face, via telephone or video conferencing depending on participant preference. The duration of the interview will vary depending on participant comfort, and the depth and scope of information participants are willing to share. We estimate the interviews will take between 30 minutes to 2 hours.
Sponsors
Eligibility
Inclusion criteria
Patient received palliative care intervention provided by RaPIC while residing in an aged care facility.
Exclusion criteria
Patient or family psychosocial risk factors precluding safe participation in qualitative research Legal guardianship of patients