None listed
Conditions
Brief summary
Endometriosis is a common yet under-recognised chronic disease. Endometriosis occurs when cells similar to those that line a persons uterus grow in other parts of their body, usually around the pelvis. Although endometriosis is often effectively managed, it can lead to debilitating chronic and persistent pelvic pain and compromised fertility. It can also significantly impact the social and economic participation and psychosocial health of those affected. it is estimated that 11.4% (more than 830 000) Australian people are living with endometriosis; however, delays in diagnosis and lack of definitive research on the domestic burden of disease suggest the number could be far higher. Surgery for endometriosis is a common procedure and randomised, placebo controlled trials have shown a benefit at 6 and 12 months following surgery, with variable changes noted in these studies in the first few months. People with endometriosis frequently report a worsening of pain following their surgery, however there are no data reporting immediate outcomes, effect on menstruation or the likely changes to expect in these first few months. Our aim is to investigate the immediate effect of surgery on people's symptoms and provide that information in publicly available forums to improve the education and understanding of how women experience symptoms in the immediate post-operative phase of care. It is important to note that we are not establishing the long-term outcomes since these are reported in other studies.
Interventions
Sponsors
Eligibility
Inclusion criteria
- People with endometriosis. This may be women, people who identify as non-binary, or transgender men. - Participants being investigated for their endometriosis-related symptoms undergoing a planned surgical procedure. - Participants fluent in spoken and written English - Willingness to give written informed consent and willingness to participate to and comply with the study
Exclusion criteria
- Patients lactating, pregnant or of childbearing potential who are not willing to avoid becoming pregnant during the study - Patient known or suspected to have a malignancy - Patients who may become distressed because of their involvement in the study