Supportive Care Needs in Melanoma Patients and their Carers

For this observational study, we are interested to examine the supportive care needs that are experienced by melanoma patients and caregivers. We would like to find out whether these needs differ according to stage of disease or place of residence. We would also like to find out correlates of patients' and caregivers' supportive care needs, understand the patients' and carers' preferences for having these needs addressed and ascertain whether all needs are covered in validated questionnaires. 1. Patients and caregivers will be required to complete an online questionnaire that will take approximately 35 minutes of their time. Due to the online nature of data collection, the participants can choose whether to complete all the questions in one session, or over multiple sessions (by saving the form and returning to it later). The questionnaires will be self-report, and hosted on REDCap, online questionnaire administration platform. The patient questionnaire will consist of (1) demographic questions (gender, age, family status, education level, place of residence, income level, time since diagnosis (2) clinical information: melanoma stage, previous melanoma treatment, current melanoma treatment, current disease status, (3) validated questionnaires: Supportive Care Needs Survey - Short Form 34, Supportive Care Needs Survey melanoma module, European Organisation for Research and Treatment of Cancer Quality of Life Questionnaire Version 3, Melanoma Concerns Questionnaire, Depression, Anxiety and Stress Scale Short Form (4) service utilisation (past and current) questions that have been developed for this study. Caregivers' questionnaire will consist of: (1) demographic information (gender, age, family status, relationship to patient, education, place of residence, income level, time since the person they care for got diagnosed with melanoma (2) clinical information about the patient they care for (stage of melanoma, previous and current treatment, disease status) and (3) validated questionnaires (Supportive Care Needs Survey - Partners and carers, European Organisation for Research and Treatment of Cancer Quality of Life Questionnaire Version 3, Depression, Anxiety and Stress scales short form (4) service utilisation (past and current) questions that have been developed for this study. 2. The participants will self-select to participate in the interview. All participants will have an opportunity to provide their contact details (email) if they wish to participate in an interview. We will monitor the interview interest to ensure that the variety of disease stages are represented in the interviewed sample. 3. The interview session will be conducted separately from the online questionnaires. It will be organised and conducted by a research assistant, with training in qualitative interview administration and will be supervised by the Principal Investigator.